The other shoe is beginning to drop and we can see it coming. It’s like one of those dreams where you’re trying to run away but you’re stuck in place and can’t get away.
I just got off the phone with Gavin’s immunologist are Akron Children’s Hospital.
She called because Gavin’s labs are a bit off. His white cell count is okay, which is good. However, his hemoglobin levels are low. She said that they aren’t to bad but it was enough to warrant a call.
She wanted to know how he’s been doing. I explained that his heart rate has been pretty high for the last few days. Right now his resting heart rate is about 130 bpm. This has her concerned and she said is early signs of adrenal crisis. His heart rate is high because his body is compensating.
The reality is that he needs to be seen in the ER.
The problem is that he also needs to be in Cleveland in the morning for that procedure and will see his autonomic specialist as well.
If we go to Akron, we kiss those very important appointments goodbye. Should we bypass Akron Children’s Hospital this time and go straight to the Cleveland Clinic ER. We would have to make the same trip in the morning anyway?
As a paramedic, that screams bad idea. As a parent wanting to find answers for his son, it seems like an option. It’s just not practical and the logistics are not going to be easy.
Either way, it’s safe to say that the entire day and possibly the rest of the week has gone straight down the crapper.
I have no idea what the right thing to do is. He doesn’t seem to be experiencing distress but than kids will compensate well for awhile and then they crash hard. I remember that from my career as a paramedic as well.
Please say a prayer…
This was posted via WordPress for Android, courtesy of Samsungs Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me.
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