I wanted to thank you all for your love and support today.  This has been a really rough day and I’m completely burned out.  Gavin is doing pretty well and is asleep on his room for tonight. 

Lizze and I need to have him to the Cleveland Clinic tomorrow afternoon and we are going to have a conversation with the doctor and find out how to proceed from here. 

I know that we are making some medication changes while we are there but there are a number of concerns that we need to address, among them are trying to get a prognosis.

My goal is to get myself in a better place so I can make the drive and survive the rest of the week. 

Thanks again for everything……

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