The tension is mounting already

I realize that this will sound cliché but you can cut the tension in our home with a knife. Gavin’s been home for two days now and to say that everyone is in edge would be grossly understating things. 

Truthfully, he’s been pretty calm but we’re already seeing the manipulation starting and the stress level in the house is climbing.

At the moment, we’re working on getting his medications straightened out and getting all the documentation we need for the changes that need to happen at school.  Physically, he’s been pretty stable today so he’s probably going to return to school in the morning. 

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As bad as it may sound, we already need the break.

Lizze is facing this situation with courage and grace, even though she’s scared to death of him.

I don’t know how to explain what living with a child like Gavin can do to even the strongest of people. Lizze is the absolute strongest person I know and Gavin’s tortured her to the point that even talking about him coming home causes an anxiety attack. 

He’s already influencing the other kids and it’s quite apparent that he hasn’t lost the ability to control people through manipulation.

One of the most frustrating things is that from the outside looking in, he seems like the sweetest kid in the world but the reality is much darker.

The combination of Aspergers, Reactive Attachment Disorder, Bipolar, schizoaffective Disorder, ODD and ADHD makes it extremely difficult to know what’s what, because many of the symptoms overlap.  The water is so muddy that you can’t see your hand in front of your face, let alone navigate the complex and confusing journey that is Gavin’s mental health.

This doesn’t even begin to factor in his extremely rare medical issues that seem to get more and more complex as things continue to worsen.

I feel so broken right now because I don’t think I’m doing anyone any good.  I can’t figure out a solution to this where everyone is taken care of.  No matter what I do, someone will pay a very high price.

Despite all this, I’m really trying to remain positive. 

To be completely honest, this is the closest I’ve ever been to giving up hope and I hate that.

I have to remain hopeful or at least learn to fake it because my family is looking to me. I have to pull us all through this and I have no idea how to do that. 

It’s really important to me that I still give back to the community and try to improve the lives of other families, even if my hands are tied with mine.  I want my kids to know how important it is to show compassion, even if you have nothing more to give. I don’t want them to be an example,  I want them to set the example.
I truly believe in paying it forward and that’s the example I want to set for my kids.

For tonight, I think I’m going to try an help Lizze to relax and maybe even relax a bit myself. 

Elliott is getting sicker and while he doesn’t know it yet, he’s going to the doctors in the morning.  Unfortunately, we have to hide this from him until the last minute because he’s going to completely freak out and the less time he has to worry, the better off he will be.  All he’s going for is a check up and to see if he needs antibiotics. Even with that knowledge, he would still be terrified.

I pray that we will have a manageable day. 


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heatherruark

I know you may have already answered this someplace else, but, why can’t your parents administer the plan that the doctors have prescribed for Gavin?  They should obviously care about his health as much as you and Lizze, why wouldn’t they follow the plan to keep him healthy?

lostandtired

heatherruark it’s not exactly that simple. Everyone is doing the best they can in a truly challenging. Both our parents have been doing everything that can. Gavin is simply so complex that what we are doing now isn’t enough.

Neesha

I bow to anyone who is raising more than one kid on the spectrum. My husband, older son and I are at the sad and broken point, hanging on by a thread to our sanity. I’m so fed up of seeing objects fly, gashes in the walls, midnight meltdowns, spitting in my face, and hearing shrieking that makes me tremble and want to dive beneath something and hide. I’m terrified of my son as well, so I totally get that part of it. He has attacked me once, and I am trying not to let that happen again. Taking him to the doctor is a form of mental torment for me, and I don’t inform him until the last minute as well. I wish you a peaceful experience tomorrow. And I do hope that you all get some well-needed rest, physical and mental! Kudos to you for being a great dad and role model. It’s tough holding it all together!

lostandtired

Neesha thank you so much for your kind words. I know what it feels like to be afraid and so does my wife. Hang in there and know that you have a friend here. 🙂

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