When I feel better, I’ll try and type this all out for those that either can’t watch YouTube or don’t want to watch a video blog.
This is something I feel very, very strongly about and I hope people will listen to this with an open mind. Please leave your thoughts below in the comments. Also, please share this across your networks and help me get this message out to as many people that are willing to listen as possible.
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thanks rob good balance
I want to do this, I don’t know how. I can’t even get my husband to understand what my life is like and what our child, actually nephew we took in when he was six, he is now 17, what his life is. This is the first website I can find understanding. This disorder has stolen my marriage, my life from me. I do nothing but try to make my nephews life better and encounter resistance everywhere. So I stopped trying to make people understand, and concentrated efforts on my child. We thought things would get easier and they got harder, especially in high school. My husband works over 90 hours a week! If there is a chore that requires leaving the home he is the first to volunteer! Everything looks so different from what it actually is- If I say anything about not having help from my husband, people rush to defend and tell me how great he is, hard worker, fun friendly. Everyone tells me, about my child, “Oh that’s teenager stuff” , “He is such a sweet boy” “You need to relax” “He will get better as he matures” NO,!! He needs more services that are not being provided! I know what teenage boys do, I have two of my own. He got worse as he matured Doctor!” I will get what he needs to function out there, to be somewhat happy and satisfied! I will get this done! It is just him and me, but I found out I’m pretty strong! I have days where I want to say NO MORE, but there is no one to take my place. It is very isolating, so lonely, but you go on! And if my husband does not straighten up his act soon, out he goes, he has become just a paycheck to me, and that is not what we need or want. Thanks for letting me share.
Good words. I love what you said about challenging people just to open up their lives and listen and participate in the life of a person w/ autism or a family w/ autism. I’ve been struggling for years to define what I, as an autism Mom NEED from the world, and you have finally aritculated it for me. The people in my life who have opened themselves up to love my kids and accept them and my family are SO PRECIOUS. Thank you for saying what I wanted to say but couldn’t quite put my finger on.
AlanaJulianaSheldahl thank you for the kind words. I’m glad that I can help.