Panic is beginning to set in

      7 Comments on Panic is beginning to set in

As I wake up this morning to Emmett melting down and a million others things weighing pretty heavy on me,  I find myself once again losing hope. 

I’m not the kind of person that ever just gives up, especially when it comes to my family. 

At the same time however, I’m truly losing hope that things will ever get better.  I’ve been working on things that I’m not at liberty to share just yet, that should greatly increase my family’s quality of life and at the same time, benefit the Autism Community as well. 

Unfortunately, I just do the know if any of this is ever really going to work itself out. 



I’m staring into the barrel of a debt collectors gun and there’s nothing I can do. 

That said, it’s really hard to prioritize things when you’re watching your families health go straight down the drain.

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With everything that we have currently on our plate, the amount of time that I have to dedicate to things that aren’t Autism or health related, is just about nonexistent.

The only reason I keep up with the blog as well as I do is because right now, it’s my only outlet. Without the writing, I’d probably go completely bonkers and then I wouldn’t be good to anyone.

I have yet to find a way that would allow me to manage my responsibilities and improve our situation. 

Panic is beginning to set in……


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  • Ella says:

    You could try writing to one of your representatives, either your a state legislator or your House representative, about about your situation. One of the jobs of representatives is to provide constituent service; that is, they are supposed to help the people in their district with problems they encounter with bureaucracy. Contacting them is for more than just advocating a policy issue. 
    I would suggest mentioning a number of the difficulties your family is facing, especially those that involve any kind of bureaucracy. Ask if there is anything they can do to make your situation less impossible. Maybe they have some ideas on housing or debt problems. You should at least get some kind of response from them, though what it will be depends on who reads your letter and how much time they can spend. And even if they cannot do anything, you will have made them more aware of the difficulties faced by families with medical difficulties, which could translate into better policies in general. If they do have some ideas, you can share them through your blog and help others. Nothing is guaranteed, but it’s worth a shot.

  • autumnjibben says:

    Iwas wondering if you could do something like we do …. both my husband and my oldest son are on SSI and I do IHSS(In home supportive services) for my husband(wheelchair and multiple medical needs) …I could have done it for my son as well when he was more severe (medical needs and autism). It is a huge help…. there is no way … I could work outside the home because of all of the medical needs in the house.This is how we survive…

  • By the way that picture of the storm clouds is scaring me! 😉

  • Thanks Amy. Just writing this helps me to feel better.

  • Hang in there!! We know it sucks….but we have to keep trying.

  • KathyBrower says:

    File bankruptcy? We did it last year, and dumped our house in a crappy scary neighborhood, and while things are still not great, at medical bills and a hideously upside-down mortgage on a falling apart house are gone.

    • lostandtired says:

      KathyBrower we were forced to file about 8 years ago, after Lizze’s divorce. Her ex ran up all kinds of bills in her name and we were just beginning to find out all that’s was about to happen to Gavin.  Unfortunately, we’ve thought about it again but I’m not sure how well it would work now that the law have been changed.