Operation Hope: I don't know what to do -

Operation Hope: I don’t know what to do

I’m getting more and more worried about Gavin. It seems like he’s slipping even more each day. The only way to describe this so it makes sense is to say that he’s becoming more and more simple.

There’s less and less complex thoughts or conversations from him.

We know this isn’t medication related. We also know that there very likely isn’t anything we can do. This appears to part of whatever the ongoing neurological process is that’s resulting in regression.

I don’t know what to do. I don’t really even know who to call.

We’ve already been told that we can’t fix what’s wrong with his brain. We also don’t know how bad things are going to get either or even how quickly.

It sounds weird but we had kinda come to terms, at least in theory. Having said that, it’s something entirely different to watch helplessly as it happens right in front of our eyes.

If there has to be a silver lining, it would be that he’s blissfully unaware of this progression, at least for the most part.


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proffy_mommy¬†thank you very much…..


I’m thinking of you and your family. Wishing there were words that could heal.

Would love your thoughts, please comment.x
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