Medication Crisis: I don’t even know where to begin

Lizze is in really bad shape today and so she’s sleeping still.  After my morning walk I began a wave of phone calls.

My first call was to Dr. Reynolds office to inquire about the status of a physicians override for Gavin’s Clazopine prescription.  I needed to follow up on the denial letter we received from Gavin’s insurance company yesterday.

Turns out that Dr.  Reynolds office has submitted the needed paperwork 2 or 3 times already and each time, it’s denied because Gavin’s dosage is higher than that of the FDA recommendation.

What does this mean for Gavin?


This is considered a crisis situation because he’s got one dose left and that’s it.  If he comes off the meds and starts them over again at a smaller dose, the life threatening side effects are much more likely to occur this time.

The reason Clazopine is the most tightly controlled medication in the US is because of how many kids have died as a result of the immunological side effects in the UK.  The most dangerous side effect is that it can cause the destruction of white blood cells. That’s why the blood work is required before all refills.


So I called Buckeye and explained that their denial was in error.

After the conversation took an unpleasant turn, I explained that my next call would be to the Ohio Department of Insurance.

She explained to me that the only chance we have of getting an override is for Dr. Reynolds to have a peer to peer talk with one of their doctors, so we can plead our case. 

Dr. Reynolds will be doing that for us and I’m waiting to hear back.

If we don’t win, we have three options.  First we can simply lower the dose. That’s a bad option because they want his dosage cut by about 60% and at that rate, we mine as well just give him a tic tac and hope for the best.

Our second option is to go with the lower dosage but then supplement it with another antipsychotic.  This is a bad option as well because we’ve already been through all the other available antipsychotics and none of them worked.

Our final option is to pay out of pocket.  This is a really, really bad idea right now because his script is over $400/month. 

All I can do now is wait.  If we can get this fixed, we may have to have blood work done today before picking it up. 

If we don’t get this fixed, I will be a thorn in the side of Buckeye until we do. 

I’ll share the other call in a later post.  This one is long enough as it is and I’m too stressed out to think right now.

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Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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Lost and Tired

Thanks everyone. 🙂

Jen Garibaldi

I would call the dept of insurance anyways. Seems you have to fight hard and often for this. The insurer should know better that you are a special circumstance and authorize accordingly

Gilda M Sanchez

Readers – for info see If required by the Ins. Co, dosage reduction must be done slowly. I hope you may find an alternative, hoping the best for Gavin!

Kari Glaser Margo

Hoping all works out for the best.


PA12602 jjean3940 raisingthekids thank you all. As to why it’s being denied, it’s a new insurance carrier for him.


He’s been on this medication for a while.  Any idea why they are just denying it now?


hang in there Rob, that really stinks.  On the positive, a peer to peer conversation very frequently has the desired effect.  I will be praying that that happens for you guys


Praying for you all