I wanted to let everyone know that despite the really rough start, Gavin’s IVIG Infusion was successful. I want to thank his nurse for doing such an awesome job.
With that said, I don’t know how much more of this my heart can take….
Gavin scared me to death this morning. This was far and away the worst I’d seen him in a long time. The was very little warning and it hit so fast.
We had a short walk and two elevator rides to get to the infusion lab. It’s roughly a five minute journey from the car to the infusion lab but Gavin needed to stop and rest three times. Two of the three times we’re involuntary breaks, meaning he physically collapsed.
He literally just fell on his butt while in the elevator, as though someone had knocked his legs out from underneath him.
At this point we were closer to the lab and I wanted to get him lying down.
I’ll be completely honest with you. I’m a seasoned medic or rather was a seasoned medic. I’ve been in situations that most couldn’t even begin to imagine. I’ve literally had my life threatened on more than one occasion and been on runs that I truly didn’t think I would come home from.
I was more scared this morning than any of those times I mentioned above.
There really aren’t words to describe what it feels like to see Gavin go into a crisis. It’s literally like watching the life slowly drain from his body. When this happens, we never know if he will ever come out of the crisis.
He gets this absent look on his face and it’s clear that he has no idea what’s happening or how serious it is.
Thankfully he pulled out of it this time and is home resting.
I don’t know if this was caused by the recent reduction in meds for his autonomic dysfunction but it definitely falls within the window of possibility. It could also have nothing to do with anything but his brain.
Anyway, thank you all for the prayers and positive thoughts today. It seems that they helped us make it through this crisis.
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hope he gets much better….disautonomy is a scary thing