BREAKING NEWS – Major progress made in the transition to home IVIG

I received a phone call today from a company that is likely to be the one that will be supplying the medication, pump and nursing staff to train us how to do the home IVIG infusion for Gavin.

She explained the process and answered about 20 minutes worth of my questions.

I learned that because of the amount of medication that he needs, he may have 3 or 4 lines running into his belly at the same time. 

image



These are all sub-q injections but Gavin is going to freak out and I can’t see any way around that.  I’m not sure that I can blame him though.  Can you? 

This process will take roughly 2 hours and have to be done once a week. 

We will have to do this while Elliott and Emmett are at school because Gavin will be at the very least be anxious and most likely really upset.  Having the other boys here will only add to the stress, not to mention freak them out as well.

Our plan is to make this a special time for Gavin. We want him to be comfortable and almost look forward to these treatments.

In theory, he should tolerate this process better but there is a downside, depending on how he handles it.  This procedure will potentially leave painful, itchy welts and this is the kind of thing that will really bother Gavin. 

Regardless, this is a very positive turn of events.  All we have to do is wait for insurance to approve this particular company and we’re a go.

Fingers crossed………

This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. 😉

Update: If you like this post, check out these as well. Click —–> Here <—– for my Top Posts.



“Like” me on Facebook

Visit the My Autism Help Forums

To reach me via email, please Contact Me

Take a second and answer the poll

Is your child with Autism verbal or non-verbal?


U-Lace No-Tie Sneaker Laces

Facebook Profile photo

About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

4
Leave a Reply (Login to the site or comment as a guest)

Please Login to comment
avatar
4 Comment threads
0 Thread replies
0 Followers
 
Most reacted comment
Hottest comment thread
1 Comment authors
Elle HansenJanet MelitiCeleste JohnsonEllenBeck Recent comment authors

This site uses Akismet to reduce spam. Learn how your comment data is processed.

  Subscribe  
newest oldest most voted
Notify of
Celeste Johnson
Guest
Celeste Johnson

Mixed blessing for sure. Hoping it all gets approved soon and this hurdle turns out to be not as big as expected.

EllenBeck
Guest
EllenBeck

Hoping it all works out for you all!

Janet Meliti
Guest
Janet Meliti

Fantastic Happy for ya.

Elle Hansen
Guest
Elle Hansen

Been here. Done this. Got the tshirt. Clear calamine lotion and soda baths helped me with the itching. As far as the actual pokes go, if you pull up on or rub the skin above the injection site at the moment of injection he might not feel it as much or at all. Good luck Gavin and family!