PLEASE READ THIS – Dedicated to all my #SpecialNeedsParents

So I found this quote and I was really taken aback by it.  It’s absolutely spoke to me on many levels and I wanted to share it with all of you and ask that you please take this to heart. 

I’m personally going through a really hard time and I know many of you are as well. 

I found this to be so fitting and it really resonated with me.  I hope it makes you realize just how strong you really are….. As always, best wishes and know that I am someone who understands……. You aren’t alone.

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  • Raynette Jones says:

    good one. of course i dont think like everyone else. i think it is hard to quit. especially since i am still trying to get my kid well. the reason i havent quit is because he is my baby. it is my responsibility to do every thing i can. i beleive in God and Jesus but i also can’t just “give it all over to him” and i have tried but i grab it right back. the reason i do that is that yes God has got this but he isnt expecting me to sit on my butt and do nothing. no one can tell me where the line is that i stop. then i have the experience that the doctors didnt believe my kid was sick (this is while and after beating cancer) and thank God i didnt stop till i got some answers and a diagnosis. now i cant stop to find the right meds or combination of meds to give him some quality of life. I have thought about it and the only way i can give up without losing my mind is to not care. that is kinda impossible since he is my kid and i love him and i see him suffer and his brother sees him suffer. you can see in the doctors eyes like “oh my God, what are we going to do with this kid”. they really want to help him and i am thankful that i have his oncologist (even though cancer free gives him ivig) his rhumatologist that is his Behcets (automimmune diesease) dr and he is THE man that gives conferences on behcets and saved my sanity by figuring out with stupid blood test (that someone else could have looked at) and then he has his infectious diesease doctor (yes he has his personal infectious diesease dr) that my son is his only “real” patient cause that dr gets called in for all the bad infectious diesease cases and has not quit on him and understands. long story short the only way i can quit is not to care and i cant quit caring. this has been going on for 12 long years and i am sick of it and my kid is sick of it but we wont quit cause it is not an option. feel free to ban be from the blog cause all that seemed negative even though i am good today. i hope everyone has a good day too

  • Great words of wisdom, thank you for sharing.