Gavin arrived back home a little bit ago and seems to be doing okay.  He tolerated the physical infusion well and so now it's just a matter of making sure he rests and gets back on his feet. As time goes on,  he does seem to be a bit disoriented and lethargic. This could simply be exhaustion from the infusion itself,  or it could be that his blood pressure is low.  We are going to take things really slow and keep him hydrated. The important thing to walk away from this post with is,  so far so good. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android,…

Gavin is on his way to receive his first antibody infusion since his dosage was increased.  We don't know how he's going to handle it. He also will not be able to receive some of the medications that help him to tolerate the infusions. These medications will interfere with the autonomic testing this week. He's also off his blood pressure medications so I don't know what else to expect. To make matters,  Lizze and I are both sick.  My parents were kind enough to take Gavin for his infusion today.  Hopefully,  everything will go well and Gavin will return this afternoon, feeling just fine. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This…

Emmett decided to get himself dressed this morning. He did a pretty good job but flubbed up just a bit.  Can you pick out the problem?

Emmett was playing with Lego’s and he built this Lego airplane. He's pretty stoked about it. I wanted to share this because I promised I would and Emmett was really excited to see his picture on the Site again. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

This week became much more complicated.  I'm sick.  That's right,  I'm sick. This is the worst thing that could have happened this week. Fortunately,  I think one of my parents are going to take Gavin to his infusion in the morning.  I think I'm gonna spend the day wishing I was dead. Lizze is still sick and not showing non signs of improvement.  It's gonna be a really,  really long week. I could use your continued thoughts and prayers. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is…

I did a very brave/idiotic thing today.  I took Elliott and Emmett to Best Buy this afternoon to trade in some of their games and use the credit to pick out some new ones. Lizze and I have been wanting to thin their DS game collection out for sometime now.  We especially wanted to purge the most frustrating games from existence. I either bravely or idioticaly,  depending on how you look at it,  took both boys in to the store at the same time.  It was just the 3 of us and no backup plan.  This was kinda like walking a tightrope without a net.  It's either really brave or really stupid. The boys actually did really well.  It took a little while for Captain Indecisive and Sergeant Can't Make…

Elliott has been obsessed with Mario for as long as I can remember.  He always making these characters out of clay, stick tac and even Legos. Today was a Lego day for Elliott as his creativity centered around Legos. This is Lego Mario,  featuring Flood.  These are characters from Super Mario Sunshine. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

I started this post this morning and then was sidetracked by Gavin's meltdown.  Gavin had yet another seizure early this morning. Clearly the depakote isn't working well but at the moment,  we can't change his meds because of the autonomic testing this week.  Neurology is concerned that any changes will further muddy the water and make things worse. All we have to do is make it through to Friday and adjustments will be made at his EEG. I know I make that sound easy,  but the reality is anything but. Gavin will be off the only meds keeping is blood pressure from crashing for the next 72 hours,  in order to have this autonomic testing done. God only knows how that's going to go. I do know that I'm going…