Dear God, Please help me to understand because I don't. I've had migraine headaches since I was pregnant with Gavin. That's 13 years now, in case you lost track. I've lived with this curse. I've learned to function with them. I've found a way to fight my way through the pain, at the expense of myself and those closest to me. Only to have my country tell me that they are "simply headaches and everyone gets headaches". Only to have them get worse now, after 13 years. Why?! I suppose I should feel lucky - and I'm sure some will tell me I should - because I've made it this long with the pain maintaining a status quo even if the frequency has increased. But I don't feel lucky and I won't.…

It just goes to show that we,  as special needs parents,  really know our kids.  Despite all the protesting from Emmett about not being tired,  I knew he was. This picture is from yesterday,  while Gavin was getting his infusion. While he didn't sleep for long,  he passed out across my legs.  He was so sleepy that he was able to fall asleep in the world's most uncomfortable position.  :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android

My God,  it's way to friggin early to be up already.  However,  Emmett has been up for hours and has already have several meltdowns.  He just screams and screams and screams,  for no decernable reason.  I'm sure there is something behind these meltdowns,  but hell if I know those reasons are. I think that life is just rough for Emmett and he doesn't know how else to handle it. Something will have to give and give soon. I can't keep this up forever.. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android

Gavin had his 12th antibody infusion this afternoon. It's hard to believe that it has already been any earlier since we discovered that he has primary immunodeficiency. I remember hearing that and being completely shocked at the news. How was this even possible? Gavin's never been hospitalized for a serious illness. How could he have made it 11 years without an immune system?  While we haven't found that answer just yet,  we've just chalked it up to God was looking out for Gavin. Gavin has to receive IVIG, once a month,  every month,  for the rest of his life. IVIG is basically,  an immune system in a bag.  It consists of antibodies that have been donated by other people.  They are the specific type that Gavin is missing,  which happens…

I wanted to talk for a little bit about what happens when routines change. Every child on the #Autism spectrum reacts differently to change.  This post in particular,  is how my youngest son,  Emmett,  has reacted to Gavin being home everyday. You may recall that Gavin has recently been pulled from school due to health related issues. This means, not only is he home everyday,  but his being home has completely disrupted Emmett's schedule.  The unexpected change has plunged Emmett into a state of chaos. It's actually a bit strange, Emmett likes the fact that Gavin's home but simply isn't coping with it very well. Emmett has become much more aggressive since Gavin has been home. He's not eating like he normally would be and he's also not sleeping for…

Today will be Gavin's 12th IVIG infusion.  It was roughly one year ago,  we found out about Gavin's immunodeficiency. It was something that completely caught us off guard. While we still don't know the actual cause,  we have made it through the first year without many hang ups. His body has decided to accept the donor antibodies with much problem. So far,  so good. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

I wrote a few months back about how I resolved our issues with the PS3 by getting rid of it.  I traded everything in and was able to use all the credit to get a Playstation Vita. The Vita is basically a very portable PS3,  about the size of the now outdated PSP. This allowed me to still play games without the kids fighting over the PS3 controller. Anyway,  I'm very careful with my things,  partly because I only really have the PS Vita left.  Everything else have been sold over the years to cover expenses.  I also like to keep my things looking new. My kids,  as much as I love them,  are not gentle with their things.  Because the Vita is the only outlet that I really have…