Gavin had his 12th antibody infusion this afternoon. It's hard to believe that it has already been any earlier since we discovered that he has primary immunodeficiency. I remember hearing that and being completely shocked at the news. How was this even possible? Gavin's never been hospitalized for a serious illness. How could he have made it 11 years without an immune system?  While we haven't found that answer just yet,  we've just chalked it up to God was looking out for Gavin. Gavin has to receive IVIG, once a month,  every month,  for the rest of his life. IVIG is basically,  an immune system in a bag.  It consists of antibodies that have been donated by other people.  They are the specific type that Gavin is missing,  which happens…

I wanted to talk for a little bit about what happens when routines change. Every child on the #Autism spectrum reacts differently to change.  This post in particular,  is how my youngest son,  Emmett,  has reacted to Gavin being home everyday. You may recall that Gavin has recently been pulled from school due to health related issues. This means, not only is he home everyday,  but his being home has completely disrupted Emmett's schedule.  The unexpected change has plunged Emmett into a state of chaos. It's actually a bit strange, Emmett likes the fact that Gavin's home but simply isn't coping with it very well. Emmett has become much more aggressive since Gavin has been home. He's not eating like he normally would be and he's also not sleeping for…

Today will be Gavin's 12th IVIG infusion.  It was roughly one year ago,  we found out about Gavin's immunodeficiency. It was something that completely caught us off guard. While we still don't know the actual cause,  we have made it through the first year without many hang ups. His body has decided to accept the donor antibodies with much problem. So far,  so good. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

I wrote a few months back about how I resolved our issues with the PS3 by getting rid of it.  I traded everything in and was able to use all the credit to get a Playstation Vita. The Vita is basically a very portable PS3,  about the size of the now outdated PSP. This allowed me to still play games without the kids fighting over the PS3 controller. Anyway,  I'm very careful with my things,  partly because I only really have the PS Vita left.  Everything else have been sold over the years to cover expenses.  I also like to keep my things looking new. My kids,  as much as I love them,  are not gentle with their things.  Because the Vita is the only outlet that I really have…

It's no secret that special needs parenting can be extremely rewarding.  However,  while it can be rewarding,  it's not without stress. This type of stress can become so completely overwhelming that it can and will affect your health,  especially if left unchecked. For today's #Autism Discussion,  I thought we could all share some ways to relieve stress. What kind of thing do you do to reduce your stress level? **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

It's no secret that Mr.  Emmett John is a handful..  He is beyond challenging for Lizze and I,  and even his brothers. However, there are moments of absolute peace that occur,  on occasion.  This afternoon was one of those moments. Emmett returned home after spending the night at Grandma's house the other night.  He was ready for a nap and so he snuggled with me on the couch. His little Gatorade stained face is just so adorable.  This moment was so peaceful and I honestly could have lived in that moment for much longer than the time I was given. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

This is just a random picture from our trip to Cleveland yesterday.  I miss being able to connect to Gavin the way we used to. I still treasure these moments though... **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

Gavin has whipped up yet another Lego masterpiece. This particular work of art happens to be a Lego Prison.  Many years ago,  he received a Lego set that was a prison.  He has long since lost the pieces to that so he decided to create his own.  I have to say this is remarkably similar to the original Lego Prison from years ago. Nice job Gav-man :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store