Well, we finished up a few hours ago.  It went pretty well.  It is however,  becoming more obvious that Gavin is regressing.  He's behaving more and more like a 3 or 4 year old would. I had to kind of keep reminding him how to behave and to be polite.  He was very demanding and down right rude to the nurse at times.  These things would be expected from a much younger child.  When comes from someone as old as Gavin,  it comes across in a different way.  The staff was very understanding but I still want Gavin to treat people with respect.  - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper…

When it's time to go back to the room where the infusions will take place,  there are a few things that have to be done before we get started. This preparation takes about an hour or so.  It involves numbing the area where the IV will be placed and meditating him so that he doesn't,  hopefully,  get sick from receiving the donor antibodies. Once all this is done,  we just have to wait until it's time for the infusion to begin.  The wait time is broken up by the PS2 for Gavin,  and the typing of this blog post for me. :-) - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing…

The IV has been placed.  Also,  we arranged for Akron Children's Hospital to draw the blood for Gavin's weekly blood draw.  This way he doesn't need to traumatized a second time today. The IVIG Infusion will take a few hours to finish.  Gavin will be having pancakes and sausage for lunch.  I, one the other hand,  am fasting for my cholesterol check I have to have done on the way home today.  Lizze is home sick with Mr. Emmett John today.  I'm so tired and I'm getting pretty darn hungry.  I'm anxious to see how far my cholesterol has come down.  While I haven't been walking,  I have been eating better.  My last check had me down to about 160 from 210. :-) - Lost and Tired Posted by Wordpress…

We have arrived at Akron Children's Hospital a little early.  We had to arrive early because we were out of supplies to prepare him at home. I just signed him in and we are waiting..... - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-) Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

Elliott's dvd player is broken.  It died a few days ago. Normal it wouldn't be a big deal,  except that Elliott had his routine and now it's disrupted.  I don't think that he actually watched it as much as listened to it while he was falling asleep.  Now he simpy can't sleep in his bedroom now.  That means we are once again camped out in the living room until I replace it,  or figure something else out.  I honestly don't mind because our mattress is shot and with my back issues,  the couch is better for me. I keep saying that I want to get the boys one of those cheap,  wireless, Netflix streaming boxes but just haven't yet.  Maybe for Christmas or with tax return... They just connect to…

Gavin will receive his 4th antibody infusion in the morning.  We will be at Akron Children's Hospital for most of the day. So far these have gone pretty well.  His body is tolerating the infusions without much side effect.  As a precaution,  we do keep Gavin home from school the following day.  This process is exhausting for him and we give him the following day to recover. You can follow along with the procedure in the morning.  I document everything and will keep the blog updated,  as I have 4 or 5 hours to kill.  :-) I wish Gavin didn't need these but I glad they are available to address the issue. - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at…

Emmett began Physical Therapy (PT)  this afternoon.  We have been waiting for this for a while now.  He basically had almost 2 hours of therapy today. He began with OT.  Then he went to speech and finally PT.  He did really well and is throughly exhausted.  You would think that the amount of hell he raises at home would be reduced in proportion to his level of exhaustion but sadly that is not the case.  He is currently raising hell with his brothers without missing a beat. :-) - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling…