This has been a really challenging week for me personally. I did quite a bit of driving and sat through my share of appointments, including Gavin's IVIG infusion for May. There's a lot going on with Lizze right now and honestly, she's not in a good place.  For me right now though, I just can't stop worrying about Gavin. I mean, I'm worried about Lizze as well but we know what we are dealing with and have a plan for addressing it.  With Gavin there's just nothing but the great unknown. At the very least, we know for sure that he's not doing well.  We know for sure that he's continually getting worse. We also know that his immune system is becoming more compromised and his neurological dysfunction is impacting…

We just remembered that there is no school in the morning.  I believe it's a teacher in service thing but it's also a well deserved break for the teachers. I'm not entirely sure what's going on with Gavin but I believe he's going to work with Lizze's Mom. This actually works out pretty well because it's really tough to sleep tonight. We don't need to worry about getting up super early.  We opted to camp out in the living room cause it was more fun for the boys.  Hopefully, we'll get the week off to a good start... :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness…

While the boys have had a really long weekend, especially with Gavin spending the night they did pretty well today. We spent Mother's Day at my parents house and the boys did really,really well. They spent the time building race tracks and little towns.  I love it when they get along and it was a really nice Mother's Day gift.  Lizze's migraine was really bad today and not having the boys screaming at each other is always a good thing and well appreciated by Lizze.  This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by…

The good news is that we should be able to get our gas turned back on Monday or Tuesday.   The bad news is that thanks to Ohio weather, it's going below freezing tonight.  I think this is a bit unusual for May, even in Ohio. We are getting prepared for this though.  Our parents have helped us to get things straightened and my parents are dropping off some space heaters. I think we are all going to hunker down in our room tonight. We don't want to put a space heater in the boys room so we're gonna have a camp out, with tons of blankets and the heaters in our room.  Our goal is to make this as much fun as possible. We are going to try our very…

I wanted to take a second and wish my amazing wife and all the Mothers in my life, both online and in person, a very happy mothers day.  Lizze doesn't usually like to celebrate Mother's Day as it's the day after the anniversary of her grandmother's passing.  We keep it simple.  Not only is simple inside our budget, it's also what Lizze wants.  It's her day so we are happy to oblige. Today, all she wants to do is sleep, so that's what she's doing right now and appears to be quite happy, cozy and warm.  In truth, I think that Mother's should be celebrated more than once a year.  I mean, honestly, where would we be without our Mom's? I hope you all have a day that is peaceful…

I woke up this morning to a house that is freezing.  We haven't been able to get the gas turned back on yet and of course, it's 38°f outside right now.. The soonest we can get the gas turned back on is Monday or Tuesday. The boys and I are buried under a pile of blankets on the couch and Lizze is snoozing away under a pile of blankets in bed. It's kind of fun to be snuggled under a pile a blankets, with my kids and watching some Ultimate Spiderman on Netflix. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and…

Our family had a bunch of college graduations this weekend and one of them was Lizze's brother. His graduation party was this evening and we were all in attendance.  The party was held at Lizze's parents house. We had a really good time and even had this sorta bizarre discussion about the possible legalization of weed in Ohio. That was a really interesting discussion and I have no idea where that even came from.  Anyway, we got to see family we haven't seen in awhile and that was nice.  The boys got to play with Gavin a little while longer before we left to cone home, leaving Gavin behind.  It was kind of a bittersweet evening but it went pretty well and I'm glad we went.  This site is managed…

Emmett came downstairs this morning and was super excited to share his latest masterpiece. This time he was using a dry erase board to create his art. He drew this house all by himself. He was so proud of this picture and wanted to make sure that everyone knew that the jaggedy stuff on the side is grass. :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.