While we were waiting for the IV infusion to complete, we had a surprise visitor. We got to meet Rosie the Chocolate Lab and her owner, Don. They come through…
Gavin has begun his IVIG infusion. This will take several hours and Gavin is manic so he's talking nonstop right now. This is going to be a very long morning/afternoon.…
Gavin is now all prepped and ready to go. The nurse is about ready to place the IV as his meds have kicked in by now. She will also draw…
We, meaning Gavin and I have arrived once again at Akron Children's Hospital for the 5th antibody infusion. We arrived pretty early and they got us back right away. Now…
I swear to God, that Gavin has to be the most destructive kid in the world when it comes to his clothes. I mean, honesty, his clothes never stand a…
Elliott woke up this morning with a rash. Not sure what it is but it's enough that he has to stay home from school. When he was examined by the…
Today was crazy busy. I was up all night with Elliott only to be up in time to make it. To Akron Children's Hospital before 8am. After 2 successful appointments,…
I finished the running around and shuttling the boys to school this morning. I dealt with the doctors at pain management for Lizze and then the insurance company. I had…