The waiting game

We are in the room now and waiting to see the doctor.  Somethings definitely...off with Gavin.  Right now he's in the hospital bed,  reading his book but something is just…

Continue Reading The waiting game

Somethings wrong

Gavin is home and somethings wrong.  We are locating a place to take Emmett John and then we are off to Akron Children's Hospital.  Gavin has an altered mental status…

Continue Reading Somethings wrong

Not good

We just got a panicked call from the school.  They said Gavin is very lethargic and having a difficult time walking.  Lizze took off a few minutes ago to go…

Continue Reading Not good

Medication Miracles

As many of you are already aware, Gavin has been on a necessary but crazy amount of medications for a long time (See: My interview on CNN). Gavin was taking…

Continue Reading Medication Miracles

It’s about freakin’ time

Sometimes it's the little things that make me feel accomplished.  For some people it's money, power, advancement ect. I'm pretty down to earth and my expectations are more...realistic.With that said, …

Continue Reading It’s about freakin’ time

Another night of therapy

Tuesday night in the Lost and Tired house means...therapy. Since Tuesday has found us once again, we have found ourselves at therapy tonight. I have Gavin and Elliott with me…

Continue Reading Another night of therapy

Haircut and Playground

These are some pictures from today's events.  Elliott got a much needed haircut and also was able to get some wiggles out as well. We managed to get all of…

Continue Reading Haircut and Playground

Meltdown Managed

I think it's important to help people understand some of what families like mine go through. This meltdown in particular was very, very mild.  However, I thought it may help…

Continue Reading Meltdown Managed