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Maybe it’s a #Depression thing

My major accomplishment today is doing Gavin's IVIG infusion. I'm gonna be honest and say that the bar is set pretty low at the moment. I'm feeling rundown and sorta…

My day summed up in a 30 second read

While I haven't gotten much accomplished today, I was able to deal with a utility issue, and get all the paperwork, including PR releases for both organizations involved in our…

My brain and body shut down

I failed on my quest to avoid a nap this morning. I tried but but brain just shutdown and my body along with it. I timed my nap to coincide…

Is this the start of concerning behavioral problems?

We've been noticing some behavioral changes in Gavin over the last twenty-four to forty-eight hours. They were more subtle at first but have become more obvious as time passes. One…

More organized and efficient

Lizze and I spent a large part of the morning, organizing Gavin's IVIG supplies. There are so many supplies we've accumulated over the years. Wenneeded to get them organized and…

Gavin just finished a very painful infusion

Poor Gavin had a really rough IVIG infusion this evening. Everything went as it normally does but for some reason it was really painful. Every once in awhile, Gavin's infusion…

How Gavin handled tonight is a blessing

Gavin had his IVIG infusion tonight because and it went pretty well. In fact, Gavin set the entire thing up, all by himself. The only thing he didn't do was…

Gavin took a big step forward today

Gavin has suddenly become more interested in assisting with his own IVIG infusions. He's been putting the equipment together for the longest time but never wanted to draw up the…