When your special needs kid turns 18, there’s a ton of shit you have to worry about

We just finished meeting with Social Security. Gavin has to requalify for permanent disability now because he's eighteen years old. The appointment only took about an hour and that's not too bad. I felt terrible because there were people without appointments who'd already been waiting almost five hours for a possible walk-in appointment. That absolutely sucks. Anyway, we answered all the necessary questions and they were really good with Gavin. Now we wait four or five months and see what happens. I'm still his payee and there was no paperwork needed for that. When Lizze and I gain permeate guardianship, I'll have to submit those papers but it doesn't really change anything. They will be pulling all of Gavin's medical records since his last appoval and using that to determine…

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I’m really going to have to buckle down today

We've got a busy day tonight and our success depends on whether or not Emmett makes it to school. It's more important that we get out the door on time because we have to have Gavin's bloodwork done and get Lizze to a doctors appointment before 9 AM. I try to be positive but I have a bad feeling about how things are going to go with Emmett in the morning. After all of the morning chaos, I have to get Gavin to Social Security for his review. I'm hoping beyond hope that they don't want to have me discuss Gavin's status in front of him. I like to include Gavin in his own care when it's appropriate but talking about all the problems he's having isn't something I want…

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When your special needs child turns 18

I just got a letter from Social Security in regards to Gavin. He and I have an appointment with social security on January 25th in regards to Gavin becoming an adult. Part of Gavin turning eighteen means that things like this are going to come up. We're currently working on permanent guardianship, which will continue to allow us to manage Gavin's life when he can't do so for himself. Gavin's nervous about going because he's never had to go to one of these before and he's concerned about shots. I'm not sure where that came from but in his head, he think the social security worker will want to give him a shot. This appointment will be the first that we have to attend in order to keep Gavin's affairs…

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