I’m very concerned
As Gavin begins to struggle more and more with life, I find myself in a position once again, where I’m unsure of what to do. Yesterday was a bit rough for Gavin. I had to make changes to the way …
Category: Gavin
It’s the only time I can break down
Gavin is getting more and more frustrated with himself over his disappearing abilities. I don’t really know how else to describe it. He hasn’t necessarily forgotten that he should know how to do things, but he’s forgotten how to do …
So here’s how Gavin’s doing
Gavin seems to be feeling okay today. That’s obviously good news, because he had a rough night, as I said earlier. He’s currently sleeping, but that’s likely just his morning meds. We’re taking it easy this afternoon but plan on …
It’s things like this that make communication challenging
Gavin had a weird night last night. Right after dinner, I got Gavin’s IVIG infusion going. The weirdness started when he decided to stop eating dinner because he thought he might get reflux if he finished it. He was afraid …
Heartbreaking signs that he’s getting worse
Gavin’s showing more and more signs of regression. As someone who sees him all day every day, it’s harder to pick up on things like this because it’s generally a gradual process. When someone sees him for the first time …
Gavin had a bad reaction to his #IVIG infusion
Gavin gets his IVIG infusion this morning, but I’m a tiny bit concerned. When he had his last infusion on Friday or Saturday, he got sick afterwards. He began not feeling well about an hour after it was done. He …