Category Archives: Gavin




Why he’s so excited about this red box

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It’s a little odd but Gavin has been chomping at the bit to get a new sharps container for the disposal of his IVIG infusion supplies. I say it’s odd because he’s been really focused on it. On Friday, I made arrangements for a new sharps container to be delivered… Read more »




Does this make me the monster I feel like I am?

I’m going to cut to the chase. Putting things bluntly, Gavin is driving me absolutely crazy and I’m not as patient with him as I should be or as much as he deserves. He’s constantly asking me the same questions and sharing outload, every thought that pops into his head…. Read more »




There is no cure for what my oldest son has but we keep pushing forward

Eariler today there was a knock at the door. It was Akron Children’s Hospital delivering Gavin’s IVIG infusion supplies. I guess I didn’t realize it was already that time of month again. Gavin has been getting these delivers for more years that I care to remember and as much as… Read more »




At least the pain doesn’t last long

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Gavin’s having a pretty decent day thus far. After taking the kids to school, I took him to get his weekly bloodwork done. Once again, he did great in that regard and now we wait for the results. Unfortunately, while he was walking out of the lab, both his hips… Read more »




I mention Gavin was struggling today and here’s what I’m seeing

This post was meant for yesterday but didn’t get published until now. The morning didn’t go as originally planned and perhaps that threw Gavin off a bit. He was definitely off this morning and it presented some frustrating situations for me. For starters, he was freaking out over his IVIG… Read more »




The judge approved my request

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I received a phone call from Probate Court, to let me know that the Judge had issued a ruling. That may sound a bit dramatic but that’s exactly what happened. Yesterday, I requested a copy of the adoption decree from when I adopted Gavin. Apparently, there’s a rather significant process… Read more »




Unfortunately, we’ve had to adjust our plans

Keeping true with the story of our lives, today hasn’t gone as planned. We were supposed to be at the Cleveland Clinic for a follow-up appointment with the epilepsy center in regards to Gavin’s recent EEG. Unfortunately, I’m not feeling well this morning and driving that distance would not be… Read more »




Why did he laugh when our dog died?

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If you read my last post in regards to Maggie passing away, you may have noticed that I never made mention of Gavin and there was a reason for that. I want to explain and hopefully educate my readers about what we saw or rather didn’t see from Gavin that… Read more »




I fear Gavin’s becoming a bit more paranoid

Lizze and I had a pretty good morning. None of the little missions we went on panned out due to bad information but it was nice to try. We ended up just walking the track. Gavin will be coming home soon because he’s apparently getting anxious/freaking out because he needs… Read more »




Making changes to keep Gavin from hurting himself at night

We’ve been having some issues with Gavin, particularly at night. The other day, Gavin got up about 9 PM to use the bathroom. Lizze was still reading to the kids and I was in the living room. All of a sudden, we heard a really loud thud. I thought Emmett… Read more »

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