Category: Gavin



I’m frustrated, heartbroken and unable to sleep

Life has been getting in the way of writing lately and that’s frustrating. This is a major outlet for me and when it’s impeded, I tend to struggle a bit more. My intention with this post is to play catch-up. I think the last time I wrote anything significant was… Read more »



Gavin said something very disturbing yesterday and this is how we’re handling it

Yesterday Gavin told me something and it’s really concerning for a number of reasons. I’m just going to get into what he told me and then discuss the reasons for concern and what we can do about it. Out of nowhere, Gavin approached me yesterday and wanted to tell me… Read more »



I have GOOD news and BAD news

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I’m going to start with the good news first because I feel pretty good about the good news. ☺ We celebrated Gavin’s birthday today and I think he really enjoyed it. I picked the boys up from school and took them to pick out some things for Gavin that could… Read more »



It’s a big day for a number of reasons

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It’s a big day today for a number of reasons. First of all, we’re celebrating Gavin’s 19th birthday. He actually turned 19 on January 18, 2019 but asked us not to celebrate it until February 1st. He wanted to wait because Kingdom Hearts III was released. That’s what he wanted… Read more »



It’s terrifying when your child with #CVID can’t get his lifesaving medication

It’s not like receiving a donated liver or kidney, where his body could reject it. That said, Gavin’s body can struggle to accept the antibodies. He can run a high fever, have seizures, experience anaphylactic shock or an autonomic crises can be triggered.



Gavin went to bed afraid and that’s not okay

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I hope everyone is staying warm. We’re having a heck of a time keeping our house warm. It’s terribly inefficient and because it’s so freaking cold out (-30°F), the furnace is running constantly and the house is barely 64°F. Extra blankets for us tonight. ☺ Anyway, we’ve had a pretty… Read more »



It’s official, schools closed for 2 days and Gavin’s medication still hasn’t arrived

It’s official.. There is no school for the next two days due to insanely cold tempratures. Friday is a bit iffy at this point but we’ll know more as the week progresses. The boys are excited but also disappointed because they really enjoy school. With that out of the way,… Read more »


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