We are celebrating Elliott Richards birthday today. We were also supposed to have Gavin’s blood work done this morning. As every single day before this plans change. Gavin is having a rough morning so there is no way we would be able to get him to and from the lab without MAJOR drama. So it will have to wait because Elliott Richard deserves his special day without Gavin raining on his parade. Lizze is out of her meds so she is in extreme amounts of pain. We are waiting for the refill to be called in from pain management. Today is going to be very hard on her so adding to the chaos is not an option. Over the past few years we have had to shift from what’s best for Gavin to what’s best for everyone else. I know that sounds mean but it is simply the reality we live in. We have to preserve the health of the healthy. No matter how much we pour into Gavin none of it ever sticks. We make sure Gavin has all the things he needs. As I promised the other day I am uploading the slide show of Elliott Richards begining. Enjoy.
Mar 05 2010