Isn’t it enough that Gavin has to struggle with Autism? I was just sitting here and it hit me. WTF does it mean to not have enough cerebral spinal fluid? How is that even possible? Isn’t it a closed system? In theory it would have to be leaking somewhere or possibly an obstruction somewhere. Maybe he isn’t producing enough? This is a pretty big deal. We will be researching the crap out of this until we go back in January.
There aren’t many tests more painful then a spinal tap. Especially for an Autistic child terrified of needles. He will have to be completely sedated. There is NO WAY he would cooperate with that. We will make sure that it isn’t done unnecessarily.
I second (third?)the general anesthesia line of thinking. You're right, there's got to be a point where the kid catches a break.
I would think for safety reasons if nothing else. But your right he needs to catch a break…..thanks
By which I meant that it's necessary, not that it isn't an option. Derp.
Yep, general anesthesia is pretty much non-optional for an autistic child.
I truly hope they see it that way. I don't see any other option. Thanks