As if we weren’t busy enough already, we now have therapies EVERY SINGLE day of the week. Gavin is restarting OT as well. Actually, Gavin started OT yesterday. Gavin used to be in speech, OT and PT until he was simply to violent. However, Gavin gets those every week at school anyway so all that happened was we were no longer doubling up. The problem is that Gavin is regressing in these areas and since school is out for the summer he would be without these therapies all together. So we had Gavin “re-evaluated”. Turns out Gavin’s muscle tone is actually worse then Emmett’s. Emmett’s is so bad that Eastgate says he needs braces on his lower legs and ankles. I think I forgot to mention that before (I’ll touch more on that in another post). I suspect that Elliott would benefit from OT/PT as well. He will need to be evaluated. Oh…and yesterday, Emmett was referred to a “feeding therapist” because, well, to be honest, I’m not really sure why. That referral came from the Developmental Neurologist.
So basically, this is what our week looks like for this summer (so far).
Elliott (Dr. Patti)
Gavin (Dr. Patti)
These are just the reoccurring weekly appointments. This doesn’t include ANYTHING else. This summer we have dozens of other appointments around Northeast Ohio. We will see the following at Akron Children’s Hospital: Gasto, Allergist, Triple P, Developmental Neurologist, Autism Clinic (Gavin and Elliott), Dentist, Nutrition, Feeding Clinic and the Sleep Clinic (Emmett). Then Gavin will be at the Cleveland Clinic for neurological follow ups. Lizze has her own laundry list of appointments this summer as well, pain management, psychologist, psychiatrist, neurologist and “hopefully” a second opinion at the Cleveland Clinic is we’re lucky.
So we have a VERY busy summer so far solely based on the health related appointments alone. My goal is to work back up to walking 30 miles per week. My blood pressure is high and my cholesterol is out of whack. The stress is taking it’s toll. I want to lose 50 lbs by the end of the year. That’s roughly 10 lbs a month and I think that’s pretty realistic considering all the walking I will be doing. You can join my Fit4Autism team on Endomondo.com. It’s free and we are racking up miles to raise awareness and improve our health. I lost a lot of weight last summer but then gained some of it back when I couldn’t escape long enough to walk and my eating habits were, we’ll just say, not the best. So that is my focus this summer. I want to get healthier for not only my kids but myself. 🙂