Childhood disintegrative disorder: Our Journey Begins
Shortly after noon today we will begin our journey to discover the truth behind what’s happening to our oldest son, Gavin. I’m scrambling today to get as many records as possible on such short notice. I’m really nervous about today and I’m not entirely sure what to expect. We’ve been to the Cleveland Clinic countless times already but this time is different.
Honestly, if we discover that Gavin does indeed have childhood disintegrative disorder, it won’t really change anything. I mean to that we will be dealing with things we have already been dealing with, only now we would know what to call it. Does that make sense?
Getting mentally prepared for a childhood disintegrative disorder evaluation
Because this all happened so quickly, we have not been able to prepare the way we would have liked. Typically, we prefer to have all our ducks in a row so to speak. Hopefully, we will be able to pick up at least some of his records, especially the letter from Dr. R. I have made all the follow up calls for records and I’m now waiting to hear back. The best we can do is just recount what has been happening over the last few years and answer any questions to the best of our ability.
Gavin has OT this morning prior to our departure. The kids are going to my parents so they don’t have to come along with us. The challenge will be getting Emmett dressed. As soon as Lizze and Gavin get back from his OT appointment we are going to get on our way.
Please keep us in your thoughts today. I intend to update while we are there. So stand by for updates.
I would like to thank everyone for your support and also for those that helped to educate me on childhood disintegrative disorder.
I just heard back from Dr. R and ALL the records will be sent via email. That way its instant and they can print off what they need.