I am being pulled in way to many different directions. Each direction is important but their is only so much of me to go around.
This week has taken it’s toll and we still have aren’t done yet. Gavin has to be to the Cleveland Clinic in a few hours. I have no idea how long this is going to take either. All I know is that it’s very important that we be there today as we have to figure out what is going on with Gavin.
Contrary to what some people assume, I don’t want preferential treatment. I simply want people to understand why things are the way they are. We aren’t irresponsible, we are simply buried and cannot keep up with everything. Whether it’s the bills, house work, yard work or anything else, I simply cannot keep up.
I’m not asking for a free pass here but maybe a little compassion and understanding would be nice. In real life, not many people seem to understand let alone care about our struggles. They expect the same from us that they would expect from anyone else. The problem with that logic is that we are not just anyone else and we are most likely dealing with way more them most other people outside the special needs community.
I just feel myself cracking under the constant demand and unrealistic expectations. I would guess that at least a few of you understand what I’m talking about, as you have been there yourself.
I’m not complaining, I just venting a little bit. There’s a difference as far as I’m concerned. I stating the fact that I don’t know how much more I can take. Like it or leave it, it’s my truth and I stand behind it.
– Lost and Tired
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I wish I was closer so I could help, too. I know how much you struggle and I would give anything to be able to be there to physically help. You need that more than anything. People can't have regular expectations of you. They have to give you some wiggle room because the floor is constantly moving under your feet, as it does for all special needs parents.
Come on, family. Cut these precious people some slack. They need your love and understanding, not judgement and unachievable expectations.
(HUGS from here in VA) Keeping your family in my thoughts and prayers.
That was really nice. Most of our family is really amazing and we are very lucky. Thanks so much for the support, it means alot.
P.S. I've always thought that the Survivor show should be about families like ours!! People would be begging to leave the island! (But we don't, do we?) Have a good day.
The only help I can give is a prayer and some understanding. I have 4 children and only 1 is disabled, or whatever term you prefer. I don't know how you do it, but please don't be bothered with those that don't understand. I wish those people could live in my shoes for just 1 day. We are much stronger than they will ever be. God bless you for all that you do! Good luck at the Clinic today. I hope you have a good doctor!
Thanks Becky, as always 😉
I am here for you and Lizze in whatever way you need me to be. I only wish I lived closer so that I could babysit for you guys and be there more!