Today has been especially challenging…at least for me. Lizze is really, really struggling. When she’s in this much pain, she’s not in the best of moods.
I guess part of the problem in the change of seasons. Not sure what it is about the season change but it’s really rough on her.
She has been in a full blown fibro flare for a couple weeks now.
She’s also got horrific migraines along with the all over pain. It’s so bad that it hurts to simply touch her skin and of course, the kids decide that they want to climb on mommy.
Lizze is basically sleeping much of the day away. If she’s in that much pain, I can’t say as I blame her. The problem is that it puts all that much more responsibility on my shoulders. I don’t mind at all but it does take its toll after a while….and its been quite awhile now.
Gavin is either not listening or simply unable to remember anything I say to him. He has also been accidentally been hurting his brothers when he loses control over his body. Totally not his fault but that’s little comfort to those injured.
Emmett is finally starting to feel better and has returned to being the little hell raiser we have come to know and love. However, his mouth is starting get to get the cold sores again and that signals another flare up. Sigh 🙁
To make matters worse, the brakes went out on the van and so it’s back in the shop. Tomorrow will make 3 days without the van. My parents have been lending us their car so we aren’t without. A huge thank you to them for that.
We are going back to the Cleveland Clinic next week to flow up with Gavin’s main neurologist.
Sometimes things happen to much to fast and I just can’t keep up with everything. I might try to get my antidepressants bumped up a bit as I feel like I starting to struggle more with all life has blessed me with.
I’m on overload and exhausted. I wish things would start to slow down so I can catch my breath.
Thanks for letting me vent…….
– Lost and Tired
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