Parenting in pain: Fibromyalgia and other chronic pain disorders

I’m not sure how many of you follow my wife’s blog.  If you don’t,  well,  you really should.  🙂 Her blog can be found at DailyMommySurvival.

Lizze does a lot of writing about her experience with Fibromyalgia. Aside from being totally proud of everything she does,  her blog is important because there are many special needs parents suffering from similar pain disorders.

Things like Fibromyalgia are made much worse by stress.  As many of you are no doubt already aware of,  special needs parenting and stress go hand in hand.

I have heard from so many people that are experiencing something similar to my wife.

I think this really needs to be spotlighted.  Special needs parenting is challenging enough,  but when you add a chronic pain disorder to the mix,  I don’t think that words can do it justice.

I’m in the process of adding a Parenting in Pain forum to the Community Autism Support Forums. I really think we need to be more aware of this problem and offer as much love and support as possible.

Today is a really bad day for my wife.  All it takes is a change in the temperature outside, rain or even humidity to send her into a pain induced tailspin.

I say tailspin because from my perspective,  she goes down hill rapidly. She will not be able to walk without the assistance of a cane and she can’t be touched. I mean that literally, because a simply hug or even just brushing against her skin is excruciatingly painful. Imagine having to manage 3 boys on the Autism Spectrum at the same time.

It’s horrible to watch her in this much pain.  I can’t even begin to imagine what it must be like for her. At the same time,  sometimes it’s easy to forget how much pain she is in because there are no bruises or other visual indicators to remind me that she is in that much pain.

Let me explain what mean.

If you see someone who has been in a major car accident,  you can take one look at them and immediately understand that they must be in a great deal of pain. You can literally see the bruises,  cuts and scrapes.

Every single day my wife feels like she has been in that very same car accident, only she has no visible signs.

There are no bruises,  cuts or scrapes. However,  she’s in the same amount of pain as the person with all the bruises,  cut and scrapes but no one empathizes with her.

People seem to have to see things to believe them.

In the case of Fibromyalgia, looks can be very deceiving.  Just because you don’t see the bruises doesn’t mean they aren’t felt.

Please support those dealing with these very real and very painful disorders.

To learn more please visit: DailyMommySurvival

If you need support from others in the same situation,  please visit Parenting in Pain forum of the Community Autism Support Forums.

 

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whynotfathers

thank you. I look at her blog regularly. sorry to hear she is feeling down, and yes, the slightest change in the weather can send us into a terrible tail spin. I spend a lot of my time in a dark room with little light because the meds for my Lupus and fibro make me sensitive to light.

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