When you have more questions than answers

I’m feeling quite overwhelmed as of late.  We keep receiving more and more bad news.  I mean,  bad news is probably the wrong word choice but it’s pretty darn close.

The latest addition to the Lost and Tired family symptoms list is now seizures. I was positive that I was going to get the EEG results back for both Gavin and Elliott and everything would be normal.  I wasn’t prepared to hear that they are having seizures.

Honestly, I don’t even know what to do with that information.  The only experience I have with seizures is as a paramedic. 

I always say that I hate going to an appointment looking for answers and end up with more questions. That has been the status quo for as long as I can remember. Yesterday was one of those rare occasions where we actually got answers. 

However,  we got just enough information to worry.  We simply don’t know enough yet and so more tests are going to be needed.

I have to say,  the most frustrating part for me is that we still don’t know why any of this is happening in the first place.  I have no health problems, aside from my cholesterol is out of balance.  Lizze has tons of health issues but most of these are caused by long term stress and not something that would necessarily be passed down to the kids.

Why is it then, that they have all these bizarre health issues?  We’re not even talking common disorders.  I mean,  some of these issues are very rare.

I just don’t know what to do at this point.

Seizures are the newest problem that we have to contend with.  They have likely been there all along,  just undetected.  We were blissfully ignorant for all this time and now that we know about the seizures,  we are worried.

I don’t think there are enough. Antidepressants in the world to even take the edge off.

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. 🙂

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Alana Sheldahl

My family has so many similarities to yours in some ways. I have fibromyalgia…three kids on the autism spectrum. Healthy dad/husband. And why are our kids sick? We've already done the BIG HOUSE MOVE thing…so we know it's not that for us (not saying that it mightn't be for you, though.).

With me having fibromyalgia…I have noticed/picked up on something. Lots and lots and lots of moms who have spectrum kids have this illness….or some autoimmune thing. Is it really from chronic stress, as you imply (I know stress might exacerbate, but I think there's something underneath that is physiological…call it factor X). So, we factor X moms have autistic kids. What's that fator X? Dr. Natasha Campbell-McBride's theory is that it has to do with gut dysbiosis. Am I 100% convinced she's right? No. Maybe 75%…convinced. I think we are the proverbial canaries in the coal mines. We "factor x" moms in our bodies, and our kids, in their brains. I wish I knew more. At any rate, I'm babbling. All this to say: YOU ARE NOT THE ONLY ONES, and I'm really really sorry that you and yours are living this life, too.

nan

Still wondering if you're dealing with mold or some other nasty toxic thing going on in that old house you live in. That can be responsible for all sorts of nasty stuff including childhood seizures, neurological problems – and for certain it can aggravate migraines and fibro. Just a thought.

Lost_and_Tired

You know, Lizze and I were talking about that this morning. The only thing we could do is have the house inspected. Our goal was to be out of here before late Spring or early Summer. However, things have changed and so we need to look into this again.

Not sure who to call. I wonder if insurance covers things like that?

I fear that you could be on to something. 🙁

Thanks Nan

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