Three days of chaos

The next three days are going to be crazy.  Beginning in a few hours,  both Emmett and Elliott will be at Speech and OT.  Well actually,  Emmett will be at speech and Elliott will finally have his OT evaluation. This has been a long time coming and all I can say is,  thank God it’s here,  because he friggin’ needs it.

Elliott has a difficult time writing or coloring for any extended amount of time because his hands will hurt.

Hopefully,  if OT and PT can both kick in,  he will be able to get the help he needs to strengthen his body to help compensate for his extremely low muscle tone and loose joints.

Tomorrow afternoon will bring with it the beginning of Elliott’s 24 hour EEG at Akron Children’s Hospital. 

Originally,  I was going to take Elliott but Emmett appears to be at the beginning of another fever flare and it may be easier for Lizze to go with Elliott and I will stay home with Emmett and Gavin. When Emmett hits these flares,  he’s extremely challenging. 

I don’t know for sure,  what we are going to do for tomorrow.  I think we are going to play it by ear.

It seems that we never know for sure what is going on. 

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. 🙂

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