In the advent of Gavin not medically stable enough to finish out the school year a few things have changed and a few problems have emerged. The most obvious thing that has changed is that Gavin is home everyday.
The school hasn’t finished setting up the visiting tutor just yet.
In light of the shift in the amount of time that Gavin is now home, some problems have developed. For starters, Gavin being home has completely disrupted Emmett’s schedule and shifted the dynamic.
The routine that we struggled so hard to get Emmett onto, has now been thrown out the window because the routine didn’t involve Gavin being home during the day.
Emmett‘s not adjusting very well. The screaming and aggression have significantly increased and Lizze typically gets assaulted at least a few times a day.
The struggle with Emmett is just a piece of the puzzle. The bulk of it is comprised of all the thousands and thousands of pieces that make up the puzzle we call Gavin. I don’t even know what to do anymore because there doesn’t seem to be any rhyme or reason to his behaviors or his medical issues..
The latest medical crisis centers around his autonomic nervous system. Basically, it’s not working correctly. He is on blood pressure medication in order to keep his pressure from crashing, when he sits or stands. It gets worse when he eats because he falls asleep as a result of his blood pressure dropping.
The meds seem to be helping as he hasn’t crashed since he’s been home. He falls asleep all the time but at home, we can accommodate that.
The problem is that until we figure out the exact cause, we can’t do much to address this, aside from treating the symptoms. We don’t know whether to let him sleep the day away or try to keep him active. We give back to Akron Children’s Hospital in a week to learn some of those things.
With all the added stress in the house, of course, Lizze body picks this time to go into the worst fibro flare I think I have ever seen her in.
I just started a new job as a professional blogger of a company that specializes in providing social skills resources to therapists, doctors, special needs teachers and parents. I have deadlines and not enough time to get anything done, especially in light of everything else that’s going on.
It never ceases to amaze me how a single event, like Gavin no longer being able to go to school, would be such a disturbance in the force. 🙁
**Thanks for reading**
-Lost and Tired
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