Lizze was at the neurologist today for her migraines. She almost always has a migraine. They don’t respond to medications and she is miserable all the time.
It has gotten to the point where the only left that they can do is Botox injections. Apparently, people have found relief from chronic migraines with Botox. Lizze isn’t excited about the idea but I think at this point, she dislikes the pain more than the needles involved.
This does come with risks. One of the side effects is migraines, which seems counterintuitive. The other is an extreme migraine when the Botox wears off.
They are putting a plan together and will likely follow up with the actual procedure at some point in the near future.
Have any of you ever had this done before? Did it help or make it worse?
Something else that was interesting was that her neurologist wants her worked up for Dysautonomia. Gavin’s doctors suggested that as well and I had forgotten all about it. Apparently, Dysautonomia has a strong genetic component. That would explain Lizze’s freakishly low blood pressure and why she gets dizzy when standing up.
We had thought it was a result of the migraines. However, it may be something else…. She should be able to get the diagnosis or evaluation at the same office she was at today. They had a doctor that specializes in autonomic disorders.
It may turn out to nothing but it would be a step in the right direction if we could find out what’s going on with her as well.
The reason this whole thing came up at the doctors today was because they can’t treat her tremors because her blood pressure is so low. That fot the conversation started and the pieces seem room fit together.
**Thanks for reading**
-Lost and Tired
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