We heard back from neurology today. Gavin’s doctor called us personally to address our concerns. Without regurgitating all the boring details, there is concern that Gavin‘s seizures are getting worse.
The fact that he’s wetting the bed says that he’s likely have more than just absent seizures.
The doctor told us that, while it’s possible for absent seizures to cause loss of bladder control, it’s extremely rare. He then prefaced that comment with, “well, we are talking about Gavin’s here, so anything possible at this point.”
Gavin is now scheduled to return to Akron Children’s Hospital for a 5 day VEEG, beginning this Friday.
He wants to keep a close eye on Gavin and see if they can uncover not only what’s going on with the seizures but also the increasing tremors that he’s experiencing.
Not that this could ever come at a good time, but as far as the timing of this is concerned, it’s pretty friggin bad. I’m not sure how we are going to pull this 5 day stint off. There are a lot of things that will need to be worked out, especially the logistics, financial aspect and who’s going to go and who’s going to stay.
If this wasn’t super important, we would probably try to push it off a few weeks until things are a bit more stable.
As with any parent, special needs or not, we got to do what we got to do.
**Thanks for reading**
-Lost and Tired
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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.