Please keep Emmett in your thoughts ;(

Mr. Emmett John has hit yet another fever flare. This flare less fever and more mouth sores. He’s absolutely miserable and I would greatly appreciate it if you would please keep him in your thoughts over the next week or so. On the positive side, at least he’s not battling a high fever as well. That means that he’s not confined to the house for the duration.

These cycles really suck for him but they do appear to be getting better over time.

Hopefully, this is an indication that he’s out growing this disorder. At least we have that……

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aimee

*Lidocaine! I’m fairly certain that I will recall number four!!!

aimee

Hey Rob,
I just thought of something. I don’t know if it will help, but it couldn’t hurt to pass along the info. When I was in HighSchool, I would get fever blisters from my nose all the way to my chin. (Imagine where an oxygen mask would cover.) Not just externally, they were in my nose, down my throat, etcetera. In fact, I was the first person in the St. Louis area to be given Acyclovir, and believe me it saved my life. But that’s not the part I think will help. They used something called ‘magic potion’ – something they gave chemo patients at the time. It was so soothing, and made life at least bearable. (I couldn’t even go to Senior Prom because I was so hideous.) Again, not the point! This potion was made of 4 ingredients:
*Benadryl
*Tetracycline
*something
*something else.
I wish I could remember!!!!! Find an oncology professional from the mid to late ’80s and they can help with the other ingredients. I hope it helps. I am racking my brain for the other 2 ingredients, I’m sure I will recall them eventually. Best of luck, you know I read you daily.

aimee

Hey Rob,
I just thought of something. I don’t know if it will help, but it couldn’t hurt to pass along the info. When I was in HighSchool, I would get fever blisters from my nose all the way to my chin. (Imagine where an oxygen mask would cover.) Not just externally, they were in my nose, down my throat, etcetera. In fact, I was the first person in the St. Louis area to be given Acyclovir, and believe me it saved my life. But that’s not the part I think will help. They used something called ‘magic potion’ – something they gave chemo patients at the time. It was so soothing, and made life at least bearable. (I couldn’t even go to Senior Prom because I was so hideous.) Again, nit the

sending positive thoughts and hugs to Emmett-hope he feels better soon x

Lynn Excell on Faceb

sending positive thoughts and hugs to Emmett-hope he feels better soon x

Feel better Emmett!

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