Do you ever miss your life before #Autism?

      18 Comments on Do you ever miss your life before #Autism?


I was wondering if you have ever missed your life before #Autism? This isn’t about feeling quilt for anything.  It’s about being honest with yourself and embracing those feelings, if you have them.

Personally, there are plenty of times where I miss my old life.

Every time I see an ambulance or fire truck driver by, I miss my old life. Sometimes I hear a song that takes me back to college, when life was much simpler.

Just because I miss these things doesn’t mean that I would want to leave my



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current life and go back. It just means that sometimes things become so very stressful and overwhelming.  At times like these,  I realize how much simpler life was back then and I miss it.

I love my family and wouldn’t trade them for anything in the world.



 

Do you ever find yourself missing your life before #Autism?  This is obviously geared more for the parents.

 

 

Take a second and answer the poll

(Poll) Is it easy to arrange play dates for your child with #Autism?

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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Rob Gorski
Admin

I miss being able to hang out with friends. For that matter, I miss having friends.

rmagliozzi
Guest
rmagliozzi

 @lostandtired Rob, have you or Lizzie thought about finding a local support group for families of autistic kids?sometimes that's a great way to find friends who will get your situation, or in the next few years, get Elliot involved in a local special olympics team. You'll find plenty of parents there you will have things in common with.  Joining support groups saved my life. I was so lonely and frustrated before.

hudginsvicky
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hudginsvicky

I just can't allow myself to go there anymore. I have a lot of regrets, and sometimes I'm even ashamed that I didn't take better advantage of opportunities I had to build a better life. But none of us have a crystal ball to warn us about the future, or to guide us along the way.
 
 

Rob Gorski
Admin

 @hudginsvicky That's interesting. Thanks for sharing ….. 

nikki barbieri
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nikki barbieri

For sure! I thought things were tough back then at times but I sure didnt know what was in store for me.lol…I have learned so much and my son is definately ' my teacher" and spiritual guide but sometimes I wish things were easier for him ,me and my younger child.I have found besides all the hard work we  do biomed,therapy etc that prayer and having a relationship with God helps so much.I've seen miracles : )

Rob Gorski
Admin

@nikki barbieri very nice to meet you and thank you for sharing.

rmagliozzi
Guest
rmagliozzi

My oldest child has pretty much had autism since he was an infant, so I don't remember anything of parenting without autism. We have not had any neurotypical days, to be honest. I remember being single, being briefly married and pregnant right away, and that was fun but stressful. I worked several part time jobs while going to college and dating my now husband, then I got married and started a boiler room type sales job and got pregnant right away. Our days now that we have discovered both kids have PANDAS are somewhat easier. I miss living in CA… Read more »

Rob Gorski
Admin

@rmagliozzi I hear you. I remember life before the switch flipped in Gavin. I also remember my life before, while I was single and in college or on the Fire Department. I thought life was son stressful back then. 😉

Carlyoung
Guest

I was diagnosed with a chronic illness long before Autism poked its head into our lives, so we have always been limited in our activities as a family.  I wonder what my girls' lives would be like if they didn't have brothers on the spectrum.  Would they be as compassionate? Would I be?  I miss my life from before I got sick, but have no reason to miss Autism.  But then, there is Marc.  I wish that he didn't have all of the blessings that he does have, but on the other hand, those blessings make him the person he… Read more »

AnnMarieHakeHughes
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AnnMarieHakeHughes

 @lostandtired Do you have respite care at all?

Batty
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Batty

Sorry I am so behind time with replies–we have been having crisis after crisis.  Yes–I miss my life when everything was still possible.  When all doors were still open.  BUT I would never wish away my children nor their unique personalities.  I do wish we all had better physical and mental health!  Auto-immune disorders are manifesting in 3 of my children now.  I miss having friends when I had time to be a friend to real live persons (not that internet friends are any less important, but they can't give hugs when needed).  Now my only friends are the few… Read more »

Carmelina
Guest
Carmelina

Yes, i definetly miss my life, however I miss myself most. Auism has drained me and squeezed my life out of me. I'm at a point where I do I not know who I am anymore. Having said this, autism also has given me power and knowledge which i never thought i would have. Ironic isn't it?

JB JOHNSTON
Guest
JB JOHNSTON

In a word………….YES!

Lost_and_Tired
Guest

Thank you for your honesty 🙂

@savvywendy
Guest

No but there are times when I don't/can't cope and I do think why me. It just seems like that. Also feels like we are battling for everything but i think that makes us stronger doesn't it ?

Lost_and_Tired
Guest

Well said 🙂

Jenn50
Guest
Jenn50

Oh, good heavens yes. I love my daughter, and I would trudge to hell and back for her and with her, but I miss living in a world where valuables don't get smashed, there's no pee and poop everywhere, and our family's schedule and finances weren't dictated by therapy. I miss being able to sleep, and I miss having friends, and I miss being able to hire a babysitter without them having to have a degree in behavioural science. I miss being able to sit in silence and not wonder what she's into, I miss cooking ONE meal, and I… Read more »

Lost_and_Tired
Guest

Wow. I think my wife could have written the same words. Trust me when I say, you\’re not alone. Very honest and very well said. Thank you.