Let’s talk about special needs parenting

      13 Comments on Let’s talk about special needs parenting


I wanted to have a discussion about special

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needs parenting.  Anything related to special needs parenting.

Is there something you would want people to know about your special needs family?



Let’s talk about it. 

This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me.



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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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lostandtiredtheideaqueenBattySteveBorgmanBetsy Recent comment authors

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Betsy
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Betsy

We feel alone…  Our DD appears "normal", so people (adults and children) are not not always kind to her, or to us her parents when she has an anxiety attack, impulse control issues, or talks a blue streak about an obscure topic using her stunning vocabulary.   (Do you REALLY think I'm going to beat my child with a belt because YOU think she needs it?!?!)   Even our now-former pediatrician treated us all poorly.   Most of our "friends" – the parents of typicals, can't understand why DD needs her various therapies and inventions "because she is so smart".   We… Read more »

Batty
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Batty

She sounds like a love and she is blessed with parents as diligent as the two of you!

Betsy
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Betsy

 @Batty Thank you very much for your kindness in replying.  =)   I really, really   appreciate your encouragement..  <3   She is most certainly a love, and I fight great guilt from when we had our own neurotypical expectations for her prior to DX, and for the stress that surely caused her.  Regardless of how high or low functioning our children may be, life has thrown us ALL a curve.  Our dreams have ALL had to change.  We are ALL universal in the suffering we feel as we see our children treated cruelly.  We have ALL had to abort family… Read more »

SteveBorgman
Guest

 @Batty I've heard special needs parenting referred to as a marathon and a rollercoaster.  It's a rollercoaster because of the ups and downs associated with our children's progress, and it's a marathon because we're in this for the long haul 🙂

Batty
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Batty

 @SteveBorgman I completely agree–I've been at this for 24 years now and there is no end in sight.  That is not to say it has been a ride I would have wanted to miss, but there are some parts I would have preferred a different route!  Having 5 children where neurological problems abound and are manifested in each can be exhausting and I have certainly felt I was at the end of my tether at various times, but I have managed to hang on!  I think my 4th and 5th children are the most difficult challenges I have faced:  Tourettes, ASD,… Read more »

Rob Gorski
Admin

@Batty @SteveBorgman I'm all to familiar with those acronyms. Something else to remember is that studies have been done that that show special needs parenting is just as stressful a being a combat soldier.

SteveBorgman
Guest

 @lostandtired  @Batty  @SteveBorgman Wow!  I would say that the degrees of combat fatigue vary according to how many children have what conditions, and the degree of severity of each of those conditions.  Also, does the person with those children have a partner, or are they working solo?  @Batty, it sounds like you have a lot on your plate.  I'm glad you have this forum's support, at the very least 🙂

SteveBorgman
Guest

 @lostandtired  @Batty I'm sorry, I meant to say betsy is the one who sounds like she has a lot on her plate.

LorcaDamon
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LorcaDamon

I'm just tired of feeling like a walking poster child. My daughter is a rarity in her town and I'm am BLESSED to say it's rare that we are ever not treated delicately when it comes to Carrie. But every once in a while I'd love to have an outing or an evening that isn't about autism, one where my whole family gets to just go and do something like other families do. Every time I turn around, autism is getting in the way, whether it's not being able to stay for the cake and ice cream at a family… Read more »

Rob Gorski
Admin

 @LorcaDamon You have every right to feel that way. What I have found is that many parents with extremely high functioning kids are not in touch with how bad things can get for those of us parenting kids more profoundly affected. 
 
I think any parent would want to relieve their childs pain, whether is't autism related or otherwise. 
If anyone gives you a hard time for feeling that way, send'em my way. 🙂

Batty
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Batty

 @SteveBorgman  @lostandtired  betsy  I have heard a talk on how one person was overwhelmed with the load that God had given him, so he asked the Lord to let him exchange burdens with another person.  So God let everyone pool their burdens together and each person could choose a new burden from the pile.  In the end, everyone took back their own burdens because all the others were too heavy for them to lift.  When I see the stories of other parents, I am awed and amazed at all they have to cope with and the struggles they go through to do… Read more »

theideaqueen
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theideaqueen

If there is one thing I'd want parents to know is that there is no "one size fits all" to ANY kind of special needs. Even autism has its different "labels", but it all comes down to a child with SPECIAL needs, not a plan like the schools try to organize. I was so sick and tired of the meetings at school and the new people every year around the table, with their ideas they could "fix" my son and turn him "normal" if they went by a specific plan. Well that does not work. They are not "normal", nor… Read more »

Rob Gorski
Admin

 @theideaqueen That is very very well said. 🙂