@ClevelandClinic: When life interferes with relief



Lizze and I have come to a realization that her entrance into the @ClevelandClinic Chronic Pain Rehabilitation Program. This has nothing to do with money or lack there of.  It has nothing to do with fear or lack of confidence in the program itself.

The truth of the matter is the fact that Lizze will only get one shot at this.  One shot to go through this intensive program and come out the other side,  better for it.

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Because there is such a huge psychological component to pain, Lizze needs to be in an emotional place that will allow her to truly benefit from all the program has to offer. This is easier said than done.



Unfortunately, Lizze is still reeling from the very recent loss of her Grandfather.

The horrifying truth is that her Grandfather won’t be the only loss she will have to cope with in the near future.  If fact, her Grandfather was the third loss of a friend or family member in the last month alone. 

Lizze is an emotional train wreck.



Not only is she grieving the recent losses but fearing the near future ones as well.

There is simply no way she would benefit from the program at this point. If we’re lucky enough to get insurance to cover this first time through we’ll be lucky. A second time through would be a pipe dream.

Sometimes reality is cruel and unfair. Unfortunately, this type of reality is not based on perceptions but rather facts. 

The reality of this particular situation is that Lizze may not be in a position to experience this program for some time.  She’s going to have to get through these very tough and heart breaking times before she’s ready to move forward with this attempt to help manage her chronic pain.

I do have a few ideas in the short term that may help her long term. I need to make a few calls and get some options. 

As always, please keep her in your thoughts and prayers during this extremely difficult time in her life.

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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Kathy Buehler
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Kathy Buehler

Well, I know what a problem insurance can be, but if the miracle happens that you are approved, I would move heaven and earth to take advantage of the opportunity to live a better, healthier life.  Something will always be happening at an inopportune time.  Since Lizzie is wired to worry, there will always be a problem she will feel deeply.  There will be no ideal emotional time to focus on herself, but she must indeed pull it together  enough to go if she is approved, or she will continue on this path, which not only impacts the quality of… Read more »

dotdash
Member
dotdash

I agree with Kathy.  If there is any way to do the program now, do it.  Insurance is going to be tougher, not easier down the road, and Lizze’s brain is not going to rewire herself.   People will not stop dying in your life and with your challenges there will never be an easy time.     (side note:  Depression often causes people to be more passive in their response to life events.  That doesn’t mean depressed people always make the wrong decision, but it does mean that we should err on the side of doing the harder, active… Read more »

Rob Gorski
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@dotdash @KathyKohlBuehler Thanks for your advice. However, this program requires her to be in a place to really work. I have spoken with people who have gone through this program or a similar one at the Mayo Clinic. You have to be in a place or you won’t benefit from the program. I have to agree because they need to deal with the psychological side of the pain. They can’t do that if it’s buried in grief. This is only a 3 week program and they won’t have time to deal with all the new trauma. You’re correct in your… Read more »

rmagliozzi
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rmagliozzi

I know this sounds weird, but does your insurance cover accupuncture at all? I am a part of a PANDAS support group, and many of the parents report their kids get chronic, debilitating migraines. Only the IV meds at the hospital or accupuncture actually work for their children. One woman said her child had a headache for many, many days and the accupuncture made it stop completely. Accupuncture is also successfully used for chronic pain, in conditions like arthritis and for chemo patients in constant pain and nausea. There is also accupressure, which you could easily learn to do at… Read more »

kathyakaNonnie
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kathyakaNonnie

Ive been dealing with chronic pain most of my adult life, I can relate to Lizzie.She needs to be the one who decides what and when regarding her health, with your support. Talking someone into something rarely works. She will know  when she is ready. If shes not seeing a counsulor, or therapist it may be something worth checking into.The mind and the body work hand in hand, and if shes not able to work on the body aspect right now, therapy can really help her thru grief, stress, and pain. I know this from past expierences. When I lost my… Read more »

MeaghanGood
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MeaghanGood

You do what you gotta do. I’m not even sure if they LET you go through the program twice if the first time doesn’t work. But I think even the IMATCH people would agree that entering in the wake of such a loss is not a good idea.   Stress had strange effects on my own headache. Or rather, I’m not sure whether it had an effect at all. I remember at Christmas, a high-stress time and even higher stress than usual that year, the pain was much worse than usual. But then there was a time when my father… Read more »