I wanted to let you know that Gavin was released from the hospital this evening around 7:30pm. I haven’t been able to update due to this site being down for a good while tonight.
Basically, Gavin stabilized throughout the day and was no longer having significant orthostatic issues.
The problem was most likely medication related. He hadn’t had his salt tabs for awhile and that threw his system out of whack. The salt tabs helped his body to retain fluids which make it easier for his heart to maintain his blood pressure.
Without the fluid retention bolstering his blood volume, his heart has to work harder to maintain.
This can also lead to the orthostatic issues as well. Orthostatic issues are when his heart rate and or blood pressure changes whenever Gavin stands up or sits down. Significant changes like see saw this morning can lead to him passing out.
He received fluids via IV and is doing better.
We have decided to bring Gavin home, at least for now because we have to stay on top of his health and that’s too difficult to do when he’s living somewhere else.
The other side of the coin is that he was coming home for Christmas break anyway and so we just brought him home a day or two early.
While this is far from ideal, we are going to to implement a very ridged structure that will hopefully help to keep him in line. We are working with his principal to help put that routine or schedule together. She will also be available to us via email over break. We can reach out he we have a problem and she will send an email to Gavin addressing the problem or praising him for a good choice.
I don’t know how this is going to work out but hopefully it will be relatively snag free.
Thank you all for you thoughts and prayers today.. We all appreciate it very much.