This afternoon I’ve been on the phone with Akron Children’s Hospital, Neurological Department and may have made some major progress.
As you may or may not know, we have literally exhausted all of our options in regards to Gavin’s health crisis and further diagnostics that could finally uncover what’s going on.
The one remaining hope we have, has also been the one thing we haven’t been able to pull off.
The one area left relatively unexplored is Gavin at a mitochondrial level. There has been some basic things check out along the way but we have not been able to get in to see a mitochondrial specialist.
We have locally, the world’s foremost authority in all things mitochondrial. Dr. Cohen is director of Pediatric Neurology at Akron Children’s Hospital. It’s a 6 too 18 month wait to get into see him and we have been waiting at least that long already.
It’s been a nightmare trying to facilitate records transfers that were a prerequisite to even getting an appointment. This is especially true because of the throughly exhaustive approach we’ve taken in our search for answers.
This afternoon, out of shear desperation I called to plead our case to Dr. Cohen’s office and find out what’s going on.
I brought them up to speed on how serious things with Gavin have become and how out of options we are.
I think the ball is finally rolling and I’m expecting progress in the very near future. If you could all please send your prayers, positive thoughts or whatever in our direction, I would be eternally grateful.
As soon as I hear anything, I will pass it along. 🙂
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