Today’s IVIG infusion @AkronChildrens (05/08/2013): Infusion Underway



Gavin is currently being infused with IVIG as I write this.  Today’s dosage increase takes us to 25mg and a slightly longer infusion time then previously.

Gavin’s doing really well and seems to be tolerating things also. 

The only problem we’ve encountered, aside from traffic this morning on the way up, is video games.  Gavin, on a few occasions, got so worked up over the game he was playing, that his heart rate shot up to almost 180/bpm.

He began shaking and then his heart rate dropped to 70/bpm.



We put the games down and laid very still and relaxed. 

Thankfully, he balanced out and nothing happened.  It could have easily gone another direction, as it has before. 

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Gavin didn’t resist taking a break and I think that made a difference because he was able to calm down quicker.  Great choice Gavin.  🙂

I believe we still have an hour or so and he’ll get his IV flush.  It actually went quicker than I thought it would.  The process start to finish will have run between 5 and 6 hours, maybe a bit less. We got here about 9:20am and should be done between 2pm and 3pm.
Something like that anyways. 

We are expecting Dr. Wasserbauer, his immunologist, in a few minutes and we will get to catch up on what’s going on. 

The whole staff here, including Dr. Wassurbower,  are absolutely amazing.  We are so blessed to have them looking after our kids. 

I look forward to the day that I can give back to Akron Children’s Hospital for all they have done for my family. 


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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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