John’s Hopkins: Closer to finding out Gavin’s future

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I spoke with John’s Hopkins this morning about where we stand in respect to Gavin being seen. Apparently, they got a large part of the records needed but they are missing the case notes. 

The case notes are a big deal. 

I email release forms to the Cleveland Clinic today and hopefully, they should have the records fax over within the last week or so. 


It’s not really a question of if we are taking Gavin across several state lines to be seen by the best hospital in the country, it’s more a matter of how and when.

If Gavin is going to be seen in the AT clinic, we will approach this whole thing in a certain way. 

However, if Gavin‘s going to be seen outside of the AT clinic, we will take a completely different approach.

I have no idea how we are going to pull this off. 

It’s roughly a 7 hour drive and so it will likely be a trip we spread out over several days.  I also don’t know if all the appointments would be on the same day or spread out over a few.

All I do know for sure is that both Akron Children’s Hospital and the Cleveland Clinic agree that this is the next stage of our journey with Gavin

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Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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Good luck!! This has been so hard for your family but anything is better than nothing and I know you’ll figure it out when the time comes. Fingers crossed for progress instead of set backs!