I wanted to share with anyone new to this site what my son Emmett goes through when he hits a PFAPF related fever flare. This is a rare fever disorder that used to come in cycles. It would hit about every 3 weeks and last for 10 days.
There isn’t a known cause for this and over time, it does seem to have slowed down a bit.
He’s in another flare now and I wanted to show you a picture of one of the many sores that appear in his mouth and throat.
This is a small one and they can get to be the size of a dime. They are as painful as they look and there is nothing that can be done about them.
He got off to school late yesterday and almost didn’t make it at all. However, he did end up feeling up to going eventually.
He’s usually quite miserable during this period of time and understandably so. Hopefully, this cycle will not last the full 10 days and he will be feeling better soon.
This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. 😉
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