I’m a Daddy on the edge – Gavin’s IVIG medication hasn’t shown up

We were told last week that Gavin’s IVIG medications would be here on Tuesday, February 18th. Unfortunately, they haven’t arrived yet and that’s making me nervous. 

These medications and supplies are supposed to be hand delivered. 

These deliveries are supposed to contain the entire months worth of supplies and medications.  That’s 240 cc’s of Gammagard, needles, tubing, tape and opsites.

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This whole fricking thing has been a disaster from day one and I’m worried that we’ve hit another hiccup

I’m going to call first thing in the morning and try to figure out what’s going on.  I feel like a Daddy on the edge and I need answers or at least some peace of mind. 

For now, please say a prayer for both my sanity and that of the person I get a hold of tomorrow and freak out on because we don’t have him medications yet. 

This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. 😉

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rjones22

i understand completely. the ins, drs, bureaucracy etc is what drives me crazy.

Janet Meliti

Oh my goodness oh no ugh I know the stress med issues bring not coming on time goo d luck

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