Confessions: How I’m not coping well with my son’s declining overall health

So I’ve mentioned that I’m going through some things at the moment but never got around to saying exactly what those things were. This is the post I promised a few days ago. I’m sorry it took so long but it’s not as easy for me to write lately.

By nature I’m a positive person. I’ve got a wicked sense of humor and I enjoy laughing. Frankly, if we’re being honest, it’s that sense of humor that’s mostly kept me from losing my mind on many occasions.

For instance, I refer to Gavin’s schizophrenic hallucinations in a manner that some may deem disrespectful but it’s simply how I cope with all of this and the name is actually very appropriate.

I’ve dubbed the friends in Gavin’s world, his visibly challenged group of super best friends.
Visibly challenged refers to the fact that only can see them and of course, super best friends refers to the fact that not only have they become Gavin’s best friends but they all have super powers.

I don’t mean anything disrespectful with those references, it’s just my way of trying to find some humor in an otherwise tragic situation.

I have to hear about all this stuff all day every day and it takes its toll.

By maintaining a sense of humor about this whole thing, I can keep myself from being swallowed up by the heartache and pain of watching my son go through this.

With all that’s been going on in our lives lately, it’s getting harder and harder for me to remain focused on the positive. I find myself getting overwhelmed by all the things that I need to be able to sorta sluff off.

There are plenty of that we experience every single day but right now they seem less impactful than they normally would.  To be completely honest with you, I hate that these victories have been out of focus and I really want to get back to a place where they are cause for celebration.

None of this has anything to do with moving home. That’s been overwhelmingly positive for everyone.

I think it’s a combination of my ongoing war with , exhaustion and coming to grips with the knowledge that Gavin isn’t going to be getting better. I’ve not even come close to accepting Gavin’s all but certain prognosis. How does a parent find peace with the fact that their child isn’t going to get better and will instead, only get worse?

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