Gavin’s had a really rough day. Behaviorally he’s been doing pretty good but health-wise he struggled.
It all began when he woke up this morning with some plumbing issues.
This caused a several hour delay in his IVIG infusion because not feeling like he could sit through it without making a dash to the bathroom.
Once we did manage to start the process it was delayed again because the pump stopped working. Then the side cramps began and I almost stopped the infusion because he was in a great deal of pain.
He did make it through and pain went away.
When he was done, he went to bed and slept for most of the day.
Before dinner we had to run to the store to pick up a present for Elliott’s best friends birthday party tomorrow. Everyone went along for the ride and Gavin ended up having more problems.
We’re gonna have to get him back to the gastro and figure out what’s going on.
What’s kinda frustrating because when it comes to Gavin’s health, we never really know for sure what’s actually going on. So much of what he complains about is not something we can visually see for ourselves.
We can only relay on what he has to tell us but we know that he does fake his symptoms. Trying to figure out when he’s faking and when he’s not is something that I hate…..
I’m truly hoping that tomorrow is a better day for him…..
This site is managed almost exclusively from my Samsung Galaxy Note 3. Please forgive any typos as auto-correct HATES me. 😉
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