Just a quick update. All the kids have gone to visit my Grandmother today and that includes Elliott. He’s been in the meds for his pink eye for 24 hours and according to his doctor, is no longer contagious.
Lizze and I stayed behind because she has previous plans with her mother and quite frankly, I needed a break.
I’m probably gonna run a few errands and perhaps get a bit of writing done.
I never have the house to myself because if someone’s not home, it’s because I’m driving them somewhere. I’m hoping that I can sorta regroup a bit and bring my stress level down a few notches….
If nothing else, I may just chill on the couch and watch some cartoons. That’s right, cartoons. They are relatively mindless and take me back to when I was in a better place.
I hope all your days are going well.
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great idea. i hope you are on the couch even for cartoons. my stress level was down a bit today but then my kid showed me where his urine looks like strong tea and immediately tears come to my eyes. I say to myself why, why, why (not why me). it was like that right after he got out of the hospital and we were hoping it was because of the tpn vitiamins and then it turned back yellow or pale yellow and then he showed me today where it is back to dark tea again. he has started taking a new vitiamin that has a bunch of vitiamins and minerals which is good so i am hoping that is it. of course i looked on the internet and it could be a liver problem but he is not jaundice at all, it could be a kidney infection but it doesnt hurt to pee and even though his back hurts, it is his behcets (autoimmune diease) usual back hurt not anything new. then there is kidney cancer. i dont thnk it is that cause we just got ivig on 4-22 so i have blood work and his white count and all is good. we go back for more ivig on 5-22 and i am going to ask about it and get a urine sample. i pray it is the vitimins. please pray it is the vitiamins
You got it. Prayers sent and continuing……..
thank you so much. keep praying. my son peed again today and it is tea colored again. he is drinking plenty. i am calling the oncologist (because he id the one that gives him the ivig) in the morning and get him seen either by the oncologist, kidney or liver drs or all three. He will see somebody. i am trying my best not to look at the internet because it doesnt tell me anything but bad stuff. i am scared to death. He is not which is good. i am so selfish because in my mind i am saying “please dont let this be anything bad” because i cant take it. tears are leaking out of my eyes as i am writing this but i am not in full blown crying. i need to calm down so i will be calm at the doctors. my job situation is a little weird as i have been out of work now have a job offer in writing just waiting for my drug and backgroud to come back. that job would start on the 18th I think. i have another job offer which is not in writing yet. supposed to get my offer letter tomorrow. already passed drug and background. bad thing that job starts 6-2 and i need the money yesterday. good news the job starts 6-2 so i can get my son his ivig and get this tea colored urine straightened out. this could just be an infection but i have had kidney infections and urinary tract infections with a trace of blood. this is not blood in that bottle it is brown (I think i am suposed to hope that this is not old blood) OMG. why cant we get him well. thanks again for your blog cause i think it helps to get this all out and i have no where to put it.
I’m so sorry. We will keep the prayers coming. Please keep me posted…. Hang in there…
Thinking of you and hoping this works out to be nothing. It must seem overwhelming but you sound like a very strong person, someone who is a rock. Hang in there.
Thanks dot. It’s so awesome to see everyone supporting each other. Not that I’m surprised but it’s just nice to see…. 🙂
thank you so much! i am ok right now. hoping to sleep. my son is so sick of going to the dr. he said that he didnt tell me sooner because he knew i would take him to the dr. he said if i make him go to the dr tomorrow he will not tell me anything that is wrong ever again. for his own sake nothing better be wrong with him cause if nothing is wrong, he is going to get the wrath of me. i did tell him he will regret saying that. i did not take it any further in case something is terribly wrong and i already feel guilty enough (you know how we feel guilty for everything for i dont know what reason) i will be using the mother guilt back on him cause i am a great mother and he knows that and he knows that the number one rule in this house is “no hurting mama’s feelings” which he did by saying that. i know he said it because it is the only power he has. how terrible that has to be. he was not being ugly when he said it, he is just trying not to go to the dr when he thinks it is nothing. he is NT so he has to know it is something. he is 21 and chronically ill and sick of it all but he has another thing coming if he thinks he can say something like that to me. he really is such a nice young man who has been thru the wringer with all this but the number one rule is the same. he will go i am sure but he ought to know i am crazy enough to call the ambulance if he doesnt and i will use my mean tone (which i am not very good at since i have had to tell the kids “i am using my mean voice” when I am using it lol.