Phantom pain with a hint of drama

We are once again having "pain" issues with Gavin. We used to get them checked out all the time but they were always deemed to be psychosomatic. We were told not to feed into them because with a child like Gavin we would just be reinforcing that there was something wrong. Yesterday Gavin started rubbing his left eye. Now we checked and there was nothing in his eye and it wasn't even red. We made him stop rubbing it and told him it will get worse if he continues to rub it. During most of the day we never heard anything about it until it was time for free read before bed. He kept coming back downstairs in an obvious attempt to avoid reading his book. Next thing we know…

2 Comments

Why?

I touched on this last night a little bit already. Elliott Richard is getting more and more frustrated with everything Gavin. He wants to play with Gavin in the worst way but it rarely works out. Gavin likes to play his way (which is the only right way in his mind) and Elliott Richards wants to play his. We have to keep things pretty mundane because Gavin just gets to out of control and someone gets hurt. I'm not sure how to best explain to Elliott Richard that Gavin is different. I know he realizes that Gavin is different but doesn't understand why. For example we just got home from my parents house (they were watching the kids for Lizze's appointment). While we were there they were playing a game…

2 Comments

Autism and “The Blended Family”. An unpleasant truth.

Disclaimer: This is not an easy subject for me to talk about. I have daily emotional struggles with this. I hope this helps someone else. As you may know we are a blended family.  I have raised Gavin since he was 15 months. I'm the only father he has ever really known. I never really looked at Gavin any different then my own kids.  The unpleasant truth for me is that it is different. I love Gavin, I always have and I always will. However, there is something different on a very basic human level.  I was there from the beginning with Elliott Richard and Emmett John. I heard their heart beat for the first time and I cried. When I saw them for the first time during the ultrasounds…

5 Comments

Lizze’s migraine

As I have mentioned before Lizze suffers from migraines. She has migraines almost daily. Meds don't work to prevent or treat them either. She just got back from her new neurologist she has through pain management and he is categorizing her as basicly disabled. She is having an MRI in 2 weeks to rule out a tumor but her cat scans have always been clear. This may be related to the fibro. I guess when you have migraines for more then 14 days out of the month and they don't respond to meds it's considered disabling. I didn't realize that. I knew it was bad but not that bad. He has also striped her diet of anything with tyramine ( I think that's what it was) in it. My mom…

2 Comments

Sacred trust

I think that there, at least in my book, are a few sacred things in life. For example, single mothers, single fathers ect.. Since entering parenthood as a father of three boys (one autistic and one being diagnosed the same) I have realized something. I think being a parent to a special needs child or children is a sacred thing. I actually realized this when I was younger. A friend of mine had a little brother with downs. It was big eye opener for me. What do I mean by sacred? I mean there are some things you just don't mess with. I will speak for myself only (but I suspect many of you feel the same). Being a parent to a special needs child (in our cause autism among…

0 Comments

Moving to Lithium

It appears that depakote will be packing its bags and going away. It looks like it's no longer an effective bipolar treatment for Gavin. He is maxed out now and so there is no more room for increase. His doctor is thinking it's time for lithium as we have already tried everything else already. This makes us pretty nervous as that is a hardcore drug. He will be closely monitored while on it so that should minimize any potential risks. He has to be treated for the bipolar otherwise he rages uncontrollably. We are waiting for the results of his last bloodwork to know for sure what we are doing. Hopefully we will know soon so we can get him stabalized. LT

3 Comments

Gavin + Puberty= Creepy

Puberty has struck our household in the form of Gavin. He has been let's say, "sexually aggressive" for the past year or so. He goes out of his way to touch, grab or grope. Male or female it doesn't seem to matter. He struggles with boundaries. He can be very driven to do or get whatever he may want. So now he has these "feelings" and apparently seeks to explore them with no regard for other people. His doctors have said we have to be very careful with him because he already has no boundaries. The latest "incident" was the other day when Lizze picked him up from school. She was talking to his teacher and Gavin went under her (Lizze's) arm and was rubbing his face all over her…

6 Comments