We just got off the phone with Lizze's new Gastrointerologist at the Cleveland Clinic.  We were forming a plan of attack to address the possibility of her actually having Celiac disease. In the past when tested, the bloodwork came back positive for the antibodies associated with Celiac. However, subsequent endoscopies and colonoscopies were negative.  We just assumed that all was well.  Having said that, after listening to all Lizze's symptoms last week, her new doctor's first thoughts seemed to be about Celiac and that's what's open this discussion once again . Personally, I'm very familiar with Celiac because we have it in my family.  My Mom was very, very ill and at times, found to be in life threatening situations as a result of going undiagnosed for so long.  She…

Spring break is all but upon us and we have found yet again that we have to adapt to this change in schedule. As you may recall, Gavin has been living with his Grandparents due to his behavioral problems. Thankfully Gavin is doing well there and doesn't miss being home.  This is because Gavin has Reactive attachment disorder and so he doesn't do well in environments that have emotional expectations and intimacy. Anyway, with Spring break approaching, we needed to figure out where he would be staying or if he would have to come home. This has been a big source of stress for us because bringing him home right now has to be a last resort. I know that sounds really bad but it's just the reality of the…

It's been awhile since I've talked about Operation Hope. Nothing has really changed but we have made a modification over the weekend. You may recall that we decided to manage Gavin's medications a little differently.  Gavin would start getting his meds in the morning at school and his evening meds from my parents before Lizze's mom picked him up. This took some of the responsibility off of Lizze's parents and spread it out across the rest of the support team. I wasn't a huge fan of this plan but it was a plan and it did seem to work. However, it wasn't long before we realized just how much of a pain in the ass this actually was. Every time anything would come up, we would have to work the…

Today has been pretty good so far.  I woke up this morning, actually feeling refreshed and ready to go. Elliott got up this morning without a problem and didn't fight us about getting dressed and ready for school. This is a great way to start the day, not to mention the week. I'm really hoping that this bodes well for the rest of the week. We could could really use a good week.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired…

It's no secret that I'm struggling a bit lately.  I have a tremendous amount on my plate and it can get quite overwhelming at times. Between everything going on with Gavin, Lizze's health, Elliott’s anxiety and a laundry list of other things, I'm feeling pretty frazzled. I imagine most people could understand that. There are times when I feel like no matter what I do, it's never going to be enough. What happens is that I get caught up in looking at the big picture and sorta get trapped.  Instead of recognizing the things I've checked off my list, I see everything that I didn't manage to get done.  Inevitably, I get demoralized, frustrated and depressed. In my life and the lives of my family, there are so many areas…

Even though I'm sick, my responsibility doesn't end.  Work still needs to be done and the boys still need my attention. Also, while Lizze has been a huge help, she needs rest as well. Tonight, one of the things I did was full fill a promise to Elliott.  That promise was that we would spend some time playing Minecraft together. We played Minecraft on the XBOX for a little while before I gave him his bath and put him to bed.  Elliott and I have just recently began a world in Survival mode.  It's a been an pretty fun experience thus far and Elliott is really, really good at Minecraft. This is one of those games that requires you to think, create, build and explore.  Elliott plans out his adventures…

I wanted to share with all of you my newest t-shirt design. This is focused on spreading the word about Autism Awareness Month. Aside from spreading Autism Awareness, my goal is to make these as affordable and accessible as possible. Today's release starts at only $10 and shares the message that "April is for Autism Awareness". This is one of my favorites and I hope you find it pleasing and something you would sport to show your support for Autism Awareness. [caption id="attachment_17018" align="aligncenter" width="523"] Click to buy me[/caption]