Gavin arrived home a little while ago from his antibody infusion. Lizze said he did very well and was polite to everyone.  Awesome job Gavin. However,  Gavin is experiencing some side effects today.  He's really tired,  which isn't surprising but he also has a headache as well. Gavin procedure was changed a little today by means of increasing the infusion rate.  Hopefully these symptoms will not last and he'll be back on his feet ASAP. At least he's not puking all over the place. Knock on wood... :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive the auto-correct induced typos

One of the things we really struggle with when it comes to raising 3 boys in the #Autism spectrum is meeting the various sensory needs. With the whole insurance/therapy fiasco,  we have been having to do as much at home as possible because they haven't been able to return to therapy yet.. Today I did some things with the boys outside,  while Lizze and Gavin were at his infusion. It may look like they're just coloring on the sidewalk but they are also getting a little sensory workout as well.  Both the boys are barefoot and walking on the rough cement.  They are stepping on little pebbles and tolerating it quite well. They are barefoot because their shoes are still wet from last night's water fight.  The front walk is…

As a father and husband to both 3 boys and a wife with special needs,  sacrifice has been part of my life for a long time. Sacrifice is something that is not exclusive to me but instead common to most parents.  Having said that,  as special needs parents,  the sacrificing is much more frequent and will happen for a much longer period of time. I think this is all pretty common knowledge. However,  despite all the sacrifices I still have the need to feel like I can still do things for myself. It promotes a sense of normalcy. For many years,  my special things was renewing my XBOX Live account.  It renewed on my birthday so that was my birthday present every year. I sacrificed my XBOX awhile ago in…

Gavin has yet another antibody infusion this morning. The reason I say yet another is simply because I lost count of where we are. Anyway,  he goes this morning,  with Lizze to Akron Children’s Hospital. The infusion takes a few hours and than he will be home once again. It think this may be his 14th or 15th monthly infusion. For those new to my blog,  Gavin suffers from primary immunodeficiency.  The antibodies he receives every month via infusion, replace his missing immune system. Gavin's natural antibody levels are less than half of what they should be.  Not only that,  but what he does produce is defective,  meaning they don't work. Every month he receives donor antibodies via IV infusion. He does really well and his body tolerates the foreign…

Today's victory is brought to you by Elliott and Emmett once again. We took the boys outside to play in the yard for a little bit.  It's been relatively quiet so we took advantage of the opportunity.  We started out playing baseball and ended up having a water fight.  It started out by giving the dogs some water and turned into Elliott and Emmett soaking each other with the hose. Why is this a Today’s Victory? Simple,  the boys don't usually like getting wet,  especially Emmett. However,  they seemed to do fine with it this evening and had a lot of fun.  Gavin didn't participate because he was going out to eat with Grandpa and couldn't afford to get dirty.  Instead,  he counted the fence posts.  :-) I love my…

My relationship with Lego's is complicated to say the least. I love the fact that my boys are so creative with them but at the same time,  I hate finding them with the bottom of my foot. No matter how many times I try to get them all picked up,  they always seem to reappear shortly after. Lego's have brought my kids together and also been the root cause of much of the fighting in the Lost and Tired household.  They always fight over individual pieces and it drives me crazy. Part of me wants to just take a break from Lego's all together and see if their relationships improve. Some of the boys tend to hoard the Lego's....cough cough Gavin cough cough. I don't think that he's trying to…