How do you know when your day is not going to go well? How about when your 6 year old asks you what a period is. It gets even worse when he's not satisfied with it's the dot at the end of a sentence. **Thanks for reading** -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive the auto-correct induced typos
Elliott and Emmett both have been handfuls today. However, since Gavin arrived home it's like they're on speed or something. They just don't stop and I'm going to lose my mind. I have decided that I'm going to find a new happy place. I need a new happy place and I need it now. I'm putting the call out to all of my readers. If you have an extra happy place could I borrow it please. It can be slightly used, I don't mind. Maybe you know someone that's trying to unload their happy place. I'd be interested in taking it out for a spin and if I like it, we can work something out. I really appreciate it... **Thanks for reading** -Lost and Tired Please join…
Gavin arrived home a little while ago from his antibody infusion. Lizze said he did very well and was polite to everyone. Awesome job Gavin. However, Gavin is experiencing some side effects today. He's really tired, which isn't surprising but he also has a headache as well. Gavin procedure was changed a little today by means of increasing the infusion rate. Hopefully these symptoms will not last and he'll be back on his feet ASAP. At least he's not puking all over the place. Knock on wood... :-) **Thanks for reading** -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive the auto-correct induced typos
My plans of setting up a 501c3 charity has met with delays caused by life and the cards I've been dealt. However, I'm always getting emails from people that would like to donate their no longer used android based smartphone or tablet for use with my Android4Autism project. Until now, I have respectfully declined these offers because I cannot offer anything in return, such as tax breaks etc. Having said that, I'm also getting lots of emails from families looking to get a device for their child. I have to tell them that I'm currently out of devices. So I have decided to move forward with Android4Autism based solely on what people are willing to donate. Please be aware that your unused/no longer used smartphone or tablet donation is welcomed.…
One of the things we really struggle with when it comes to raising 3 boys in the #Autism spectrum is meeting the various sensory needs. With the whole insurance/therapy fiasco, we have been having to do as much at home as possible because they haven't been able to return to therapy yet.. Today I did some things with the boys outside, while Lizze and Gavin were at his infusion. It may look like they're just coloring on the sidewalk but they are also getting a little sensory workout as well. Both the boys are barefoot and walking on the rough cement. They are stepping on little pebbles and tolerating it quite well. They are barefoot because their shoes are still wet from last night's water fight. The front walk is…
As a father and husband to both 3 boys and a wife with special needs, sacrifice has been part of my life for a long time. Sacrifice is something that is not exclusive to me but instead common to most parents. Having said that, as special needs parents, the sacrificing is much more frequent and will happen for a much longer period of time. I think this is all pretty common knowledge. However, despite all the sacrifices I still have the need to feel like I can still do things for myself. It promotes a sense of normalcy. For many years, my special things was renewing my XBOX Live account. It renewed on my birthday so that was my birthday present every year. I sacrificed my XBOX awhile ago in…
Gavin has yet another antibody infusion this morning. The reason I say yet another is simply because I lost count of where we are. Anyway, he goes this morning, with Lizze to Akron Children’s Hospital. The infusion takes a few hours and than he will be home once again. It think this may be his 14th or 15th monthly infusion. For those new to my blog, Gavin suffers from primary immunodeficiency. The antibodies he receives every month via infusion, replace his missing immune system. Gavin's natural antibody levels are less than half of what they should be. Not only that, but what he does produce is defective, meaning they don't work. Every month he receives donor antibodies via IV infusion. He does really well and his body tolerates the foreign…
Hello everyone. I thought this would be a good topic for today's Friday Forums. For many families out there touched by special needs children, life is challenging. However, how do you balance financial security and raising a special needs family? I was thinking we could share some tips and tricks when it comes to managing money, planning for the future and covering medical expenses. This is a pretty broad topic so anything goes. Here's an example of what I mean. When you have a limited grocery budget, how do you provide for a child with special and expensive dietary needs? You get the point. Let's help each other learn to better survive.... :) The discussion will take place in #Autism Help Forums. Registration is simple, fast and free. You will…