Good News/Bad News   Lizze visited with her neurologist this morning. This was a very bittersweet appointment and one that brought with it, some very disheartening news. One the positive side, her neurologist has agreed to take over as her pain management doctor. This is a really good thing because it puts all her care under one roof. This also means that only one doctor will be managing all her medications and that's also a good thing. However, this is where the good news ends and the bad news begins. Out of options   Lizze has had the same migraine now for over 5 months. The previous headache infusion was a failure. For those unfamiliar with what a headache infusion is, it's basically Intravenous medications, given for a set period of time per day for…

We met with Dr.  Pattie last night to discuss Gavin’s behaviors and the impact they are having on the family.  She watched the videos and described the behavior as institutional behavior. This is very concerning because he's continually escalating. Since this is willful behavior it's even more concerning. The reason is because when doesn't get the reaction he's looking for,  he ups the anty.  The biggest concern is how far is he willing to go. If he doesn't get the reaction he's wants,   by hurting himself,  what will he do next? His meltdowns are becoming much more violent and they are moving in a direction that makes them more dangerous to those around him. One of the things Dr. Pattie mentioned last night was that Gavin has absolutely no ability…

I wanted to share a few pictures I took the other day.  These were shot with my Samsung Galaxy Nexus.  I was pretty impressed by the quality of the shots. My subject was a baby Praying Mantis.  We have tons of these things all around the house.  For whatever reason,  the rose bush,  behind my house is a hot spot for Praying Mantis.  There are egg sacs all over.  These little guys are finding their way into our house. That where I first met this guy. He's so tiny,  I had to be really careful not to squish him when I moved him outside. It's supposed to be good luck to have these around. While there jury's still out on that one,  I did enjoy seeing a baby Praying Mantis, …

Alright,  so tomorrow is the last day of school.  This time,  I'm like 99.9% sure.  :-) Elliott had a rough start to the year but hit his stride just a few weeks into the school year.  He has done absolutely amazing this year and I'm sooooo proud of him. He's looking forward to returning next year and that is really good news. I'm really grateful for all that Summit Academy has provided him this year. They made the transition easier for Elliott and I look forward to returning next year.  :-)

Alright. The site is most restored. There is some memory issues that are causing the site to shut down. We were trying various things to identify the problem and can't seem to find what's going on. For now, I'm back up and running. I've scaled things back a little bit in hopes of helping things out. My good friend Stuart Duncan is been working very hard to fix this problem and for that I'm extremely grateful. He working with the awesome team at EZP.net to get this fixed. As is the tradition with the Lost and Tired family, this issue is bizarre and doesn't make any sense. I really want to express my appreciation to Stuart and the support staff at EZP for helping to get me back up and running. I'm really sorry this…

Gavin had the worst meltdown I have ever seem this morning. I don't know what is happening to him but he is escalating out of control.  This morning he completely flipped out over Lego's. He has been hoarding all the Lego's again. He makes these amazing creations, which is awesome. However, the problem is that he keeps these things long term. Basically, there's no Lego's left for the other boys. This leads to problems. This morning I told him that he needs to put the Lego's back into the pot. I explained to him that his big Lego car needs to be pulled apart and the Lego's returned to the bin. He began doing so, until I left, that is. As soon as I left, he hid his car and…

I'm experiencing tech issues at the moment. The site will be usable but may see some widgets or pages disappear temporarily.   Thank you for your patience

As any of my long time readers will remember,  I suffered a major back injury in 2001. I have been in constant pain for most of the last decade. Nothing would relieve the pain,  not even pain killers. I need to have surgery but never had it. I felt there was to much risk involved and I had to many responsibilities. Anyway,  about 2 years ago,  I started walking. Short distances at first but eventually making it to about 25-30 miles a week. Before I realized it,  my back pain was gone and mean completely gone. I still had the physical injury,  but the symptoms had finally subsided. Recently,  the pain has returned because I haven't been able to get away and walk.  I was walking at home until our…