While I didn't get much sleep last night, I wanted to finish this update and explain what is going on at this point. In case you missed it, Gavin came home last night. He could have stayed longer but we needed to see how he will function back at home. He is drinking and keeping fluids down and that's a big thing. He's also drinking Boost for now, in place of solid food. While it may seem strange that a child going through what Gavin is going through has been released and sent home, it really isn't. In many cases, there isn't much that can be done for an autonomic disorder. I don't know a great deal about the intricacies involved but I think that it's one of those things where you…

After all the fear and despair this week has brought, it was comforting for me to see this peacefully quiet moment. Bella is all curled up and snuggling with her friend Emmett John. I simply love these moments.  :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

In the Lost and Tired family, we don't believe in spanking or hitting.  So we have to do a lot of outside of the box thinking. We recently took in a puppy a couple of months ago. Bella has been a great edition to the Lost and Tired family. Although she doesn't require some patience and training. Elliott and Emmett are requiring a great deal of time, energy and most of all, patience.  I'm becoming increasingly overwhelmed and frustrated by their behavior. Their are both fanfreakingtastic kids and I love them completely. Having said that, sometimes I find myself wanting to use the training methods from Bella as a means of deterring the problem behavior with the boys. Basically,  it would go something like this.  When Emmett and Elliott were…

It's like 3am and Elliott is awake and ready to start his day. This is not going to work.  Daddy is way to tired for this today. He and I have moved to the living room so that Emmett will go back to bed. Not the best way to begin the new day. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

These pictures are from this morning. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

I apologize for the delay in updating on Gavin's condition. Things have been crazy today. He has been released and just arrived home. I'll update on the details tomorrow because I'm just to tired. Basically, this may be the new normal for Gavin. I think we have turned another corner in his continuous decline. He's on a water pill to increase his blood pressure. They released him because he's on the new meds and he's keeping his fluids down. We have a great deal of work and stress ahead of us. Depending on how Gavin does, our entire lives may change. Thank you for all the love and support. I promise to get you all caught up in the morning. **Thanks for reading**        -Lost and Tired Please…

I have only been up about an hour and already things are getting out of control.  Emmett has done nothing but scream. Elliott is wound pretty tight this morning as well. The combination of Elliott and Emmett is akin to gasoline and a lit match. They don't play well together. I'm gonna get Elliott to school and then figure out how to get up to see Gavin. I'm extremely anxious right now because Lizze's phone stopped working yesterday and the hospital phone doesn't allow long distance. All I can do is call the room but they are hopefully sleeping and I don't want to be the one to wake them up. This is so incredibly frustrating and the feeling of helplessness is overwhelming. Thank you all for your continued support. …

I spoke with Lizze about an hour ago and Gavin was having a lot of chest pain. Whether is reflux or actually cardiac remains to be seen. He's on meds for that so it's likely not reflux. He is not able to walk because as soon as he stands up his heart rate shoots up and his blood pressure crashes. At this point,  they can't find anything wrong. He's not sick and it's not medication related. He is pumped full of fluids to the point that his pee comes out as clear as it went in. It would appear as though they have addressed the dehydration and yet it's not changing anything. They are bringing his neurologist in sometime tomorrow. I don't know of he will be released tomorrow but…