We're at the geneticist at Akron Children's Hospital and Gavin is not doing well.  He is experiencing a great deal of chest pain and is extremely altered. Somethings wrong. At least we are in the right place for by his right now. While we were waiting,  I almost took him to the ER because he was in so much pain. On the way downstairs,  the pain subsided and we decided that we would return to genetics because of how important this appointment is.  We've been to the cardiologist countless times for the chest pain and they always say there's nothing wrong.  I never know if we are making the right decision at the time but there is no instruction book that comes with special needs kids.  All I can do…

Today is a pretty big day for the Lost and Tired family. We return with Gavin to Akron Children's Hospital, only this time it's to the geneticist. Gavin has already had some genetic work up done in the past.  They were looking for specific things. This time around we are doing the Chromosomal Microarray. This is a much more in depth test.  My understanding is that they will not be looking for something in particular but instead looking for anything they can find. Hopefully,  we will learn something from this process. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I…

With all the negative the Lost and Tired family faces each day, I'm trying to focus on The Lighter Side of #Autism. I don't think this needs any explanation but I will say that weighted blankets can work wonders. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

I have been trying to process all of this new information about Gavin’s health. To be completely honest, I'm a bit overwhelmed at the moment. Thinking about everything Gavin has been officially diagnosed with is breaking my heart and scaring me to death. So far Gavin has been diagnosed with Aspergers, OCD,  ADHD, Bipolar disorder, Schizoaffective disorder, Asthma, PTSD, Primary immunodeficiency, an exotic degenerative neurological disease and now epilepsy. It's a long list of mostly rare and unusual disorders.  This also doesn't include Dysautonomia,  which he is going to the Cleveland Clinic on Friday for. Some of these are very serious and others are simply challenging. Not only do I live in fear of where this journey is going to take us but also what it may take from us.…

I'm laying here in bed,  trying to sleep and there have been several rounds of gunfire. So far I've heard over a dozen shots tonight in the span of only a few minutes. The first was like,  bang.....bang.....bang.....bang. The second was like,  bang.bang.bang.bang.bang.bang.bang.bang. I just called 911 and the cops are on their way to check things out. I also made Lizze turn the lights out and come upstairs because I don't want her to be a random target. This is really sad that it's come down to fearing for our lives,  not to mention scary. I've spoken with my neighbors recently and everyone is scared for their lives. I thinking that moving is going to have to take center stage because we haven't even hit summer yet and already…

In my attempt to see the silver lining in everything,  I wanted to award Today's Victory to both Lizze and Gavin. While Gavin didn't make the best choices while he was there,  it could have been much worse. Regardless of the fact that we received bad news and Gavin puked all over the inside of the van on the way home,  he came home.  In the end,  despite everything else,  he came home. Lizze survived the 48 hours without any of her meds and was able to ensure that Gavin’s needs were met. I know it wasn't always pleasant and certainly wasn't easy but she pulled it off. It's nice to have them home.... That is how I'm choosing to view the events of today. **Thanks for reading**    …

It didn't take long for things to get back to normal.  Elliott and Emmett are at each others throats.  The screaming and whining is killing me. I got the puke cleaned out of the van and Gavin’s IEP signed.  I managed to cut our grass and even weed eat as well.  I even did my neighbors yard as well.  The kids are fed and Emmett is getting brushed,  to help calm him down. Elliott is hanging out with Gavin and I'm trying to eat something myself. This may be it for the day as I'm completely drained and I have another crazy busy day tomorrow.  Please accept my most humble thank you for all the love and support you have shown my family.  We are so grateful to know each…

I'm going to be brief because I have a chance to nap before finishing up my day. Gavin was extremely rude and disrespectful while at the hospital.  Lizze is pretty upset and rightfully so. We decided that we would deal with it as a team after he left the hospital today. However,  the moment he walked out the door,  he began complaining of a tummy ache.  He was extremely dramatic all morning and so this fits right in with the rest of his behavior choices recently. However,  Lizze took him back into the hospital and brought him to the bathroom,  just in case. He ended up not having to pull after all. We got about halfway home and he starts with the dramatics again. Just in case I pull off…